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What makes administrative data “research-ready”? A systematic review and thematic analysis of published literature

INTRODUCTION: Administrative data are a valuable research resource, but are under-utilised in the UK due to governance, technical and other barriers (e.g., the time and effort taken to gain secure data access). In recent years, there has been considerable government investment in making administrati...

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Autores principales: Grath-Lone, Louise Mc, Jay, Matthew A., Blackburn, Ruth, Gordon, Emma, Zylbersztejn, Ania, Wijlaars, Linda, Gilbert, Ruth
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Swansea University 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9052961/
https://www.ncbi.nlm.nih.gov/pubmed/35520099
http://dx.doi.org/10.23889/ijpds.v7i1.1718
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author Grath-Lone, Louise Mc
Jay, Matthew A.
Blackburn, Ruth
Gordon, Emma
Zylbersztejn, Ania
Wijlaars, Linda
Gilbert, Ruth
author_facet Grath-Lone, Louise Mc
Jay, Matthew A.
Blackburn, Ruth
Gordon, Emma
Zylbersztejn, Ania
Wijlaars, Linda
Gilbert, Ruth
author_sort Grath-Lone, Louise Mc
collection PubMed
description INTRODUCTION: Administrative data are a valuable research resource, but are under-utilised in the UK due to governance, technical and other barriers (e.g., the time and effort taken to gain secure data access). In recent years, there has been considerable government investment in making administrative data “research-ready”, but there is no definition of what this term means. A common understanding of what constitutes research-ready administrative data is needed to establish clear principles and frameworks for their development and the realisation of their full research potential. OBJECTIVE: To define the characteristics of research-ready administrative data based on a systematic review and synthesis of existing literature. METHODS: On 29(th) June 2021, we systematically searched seven electronic databases for (1) peer-reviewed literature (2) related to research-ready administrative data (3) written in the English language. Following supplementary searches and snowball screening, we conducted a thematic analysis of the identified relevant literature. RESULTS: Overall, we screened 2,375 records and identified 38 relevant studies published between 2012 and 2021. Most related to administrative data from the UK and US and particularly to health data. The term research-ready was used inconsistently in the literature and there was some conflation with the concept of data being ready for statistical analysis. From the thematic analysis, we identified five defining characteristics of research-ready administrative data: (a) accessible, (b) broad, (c) curated, (d) documented and (e) enhanced for research purposes. CONCLUSIONS: Our proposed characteristics of research-ready administrative data could act as a starting point to help data owners and researchers develop common principles and standards. In the more immediate term, the proposed characteristics are a useful framework for cataloguing existing research-ready administrative databases and relevant resources that can support their development.
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spelling pubmed-90529612022-05-04 What makes administrative data “research-ready”? A systematic review and thematic analysis of published literature Grath-Lone, Louise Mc Jay, Matthew A. Blackburn, Ruth Gordon, Emma Zylbersztejn, Ania Wijlaars, Linda Gilbert, Ruth Int J Popul Data Sci Population Data Science INTRODUCTION: Administrative data are a valuable research resource, but are under-utilised in the UK due to governance, technical and other barriers (e.g., the time and effort taken to gain secure data access). In recent years, there has been considerable government investment in making administrative data “research-ready”, but there is no definition of what this term means. A common understanding of what constitutes research-ready administrative data is needed to establish clear principles and frameworks for their development and the realisation of their full research potential. OBJECTIVE: To define the characteristics of research-ready administrative data based on a systematic review and synthesis of existing literature. METHODS: On 29(th) June 2021, we systematically searched seven electronic databases for (1) peer-reviewed literature (2) related to research-ready administrative data (3) written in the English language. Following supplementary searches and snowball screening, we conducted a thematic analysis of the identified relevant literature. RESULTS: Overall, we screened 2,375 records and identified 38 relevant studies published between 2012 and 2021. Most related to administrative data from the UK and US and particularly to health data. The term research-ready was used inconsistently in the literature and there was some conflation with the concept of data being ready for statistical analysis. From the thematic analysis, we identified five defining characteristics of research-ready administrative data: (a) accessible, (b) broad, (c) curated, (d) documented and (e) enhanced for research purposes. CONCLUSIONS: Our proposed characteristics of research-ready administrative data could act as a starting point to help data owners and researchers develop common principles and standards. In the more immediate term, the proposed characteristics are a useful framework for cataloguing existing research-ready administrative databases and relevant resources that can support their development. Swansea University 2022-04-27 /pmc/articles/PMC9052961/ /pubmed/35520099 http://dx.doi.org/10.23889/ijpds.v7i1.1718 Text en https://creativecommons.org/licenses/by-nc-nd/4.0/This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
spellingShingle Population Data Science
Grath-Lone, Louise Mc
Jay, Matthew A.
Blackburn, Ruth
Gordon, Emma
Zylbersztejn, Ania
Wijlaars, Linda
Gilbert, Ruth
What makes administrative data “research-ready”? A systematic review and thematic analysis of published literature
title What makes administrative data “research-ready”? A systematic review and thematic analysis of published literature
title_full What makes administrative data “research-ready”? A systematic review and thematic analysis of published literature
title_fullStr What makes administrative data “research-ready”? A systematic review and thematic analysis of published literature
title_full_unstemmed What makes administrative data “research-ready”? A systematic review and thematic analysis of published literature
title_short What makes administrative data “research-ready”? A systematic review and thematic analysis of published literature
title_sort what makes administrative data “research-ready”? a systematic review and thematic analysis of published literature
topic Population Data Science
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9052961/
https://www.ncbi.nlm.nih.gov/pubmed/35520099
http://dx.doi.org/10.23889/ijpds.v7i1.1718
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