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Building a dedicated pediatric pulmonary hypertension program: A consensus statement from the pediatric pulmonary hypertension network

Pediatric pulmonary hypertension (PH) is a severe, life‐threatening disease associated with diverse cardiac, pulmonary, and systemic disorders, which generally requires expertise from multiple disciplines for management. Unfortunately, expert centers are limited, often due to inadequate resources or...

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Autores principales: Handler, Stephanie S., Varghese, Nidhy P., Rosenzweig, Erika B., Yung, Delphine, Krishnan, Usha, Whalen, Elise, Bates, Angela, Avitabile, Catherine M., Jackson, Emma O., Hirsch, Russel, Fineman, Jeffrey, Abman, Steven H.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9052968/
https://www.ncbi.nlm.nih.gov/pubmed/35506071
http://dx.doi.org/10.1002/pul2.12031
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author Handler, Stephanie S.
Varghese, Nidhy P.
Rosenzweig, Erika B.
Yung, Delphine
Krishnan, Usha
Whalen, Elise
Bates, Angela
Avitabile, Catherine M.
Jackson, Emma O.
Hirsch, Russel
Fineman, Jeffrey
Abman, Steven H.
author_facet Handler, Stephanie S.
Varghese, Nidhy P.
Rosenzweig, Erika B.
Yung, Delphine
Krishnan, Usha
Whalen, Elise
Bates, Angela
Avitabile, Catherine M.
Jackson, Emma O.
Hirsch, Russel
Fineman, Jeffrey
Abman, Steven H.
author_sort Handler, Stephanie S.
collection PubMed
description Pediatric pulmonary hypertension (PH) is a severe, life‐threatening disease associated with diverse cardiac, pulmonary, and systemic disorders, which generally requires expertise from multiple disciplines for management. Unfortunately, expert centers are limited, often due to inadequate resources or unfamiliarity with needed components for success. The Pediatric Pulmonary Hypertension Network (PPHNet) includes expert centers in North America specifically dedicated to advancing the field of pediatric PH through research and excellent clinical care. PPHNet member sites were queried for valuable program components and these findings were discussed for consensus. Here we provide a collective overview of key elements of an optimal pediatric PH program: team composition, access to services, and commitment to education. It is our intention that this document will assist newer and/or smaller programs identify avenues and resources for growth and provide avenues for collaboration.
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spelling pubmed-90529682022-05-02 Building a dedicated pediatric pulmonary hypertension program: A consensus statement from the pediatric pulmonary hypertension network Handler, Stephanie S. Varghese, Nidhy P. Rosenzweig, Erika B. Yung, Delphine Krishnan, Usha Whalen, Elise Bates, Angela Avitabile, Catherine M. Jackson, Emma O. Hirsch, Russel Fineman, Jeffrey Abman, Steven H. Pulm Circ Research Articles Pediatric pulmonary hypertension (PH) is a severe, life‐threatening disease associated with diverse cardiac, pulmonary, and systemic disorders, which generally requires expertise from multiple disciplines for management. Unfortunately, expert centers are limited, often due to inadequate resources or unfamiliarity with needed components for success. The Pediatric Pulmonary Hypertension Network (PPHNet) includes expert centers in North America specifically dedicated to advancing the field of pediatric PH through research and excellent clinical care. PPHNet member sites were queried for valuable program components and these findings were discussed for consensus. Here we provide a collective overview of key elements of an optimal pediatric PH program: team composition, access to services, and commitment to education. It is our intention that this document will assist newer and/or smaller programs identify avenues and resources for growth and provide avenues for collaboration. John Wiley and Sons Inc. 2022-02-15 /pmc/articles/PMC9052968/ /pubmed/35506071 http://dx.doi.org/10.1002/pul2.12031 Text en © 2022 The Authors. Pulmonary Circulation published by John Wiley & Sons Ltd on behalf of Pulmonary Vascular Research Institute. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
spellingShingle Research Articles
Handler, Stephanie S.
Varghese, Nidhy P.
Rosenzweig, Erika B.
Yung, Delphine
Krishnan, Usha
Whalen, Elise
Bates, Angela
Avitabile, Catherine M.
Jackson, Emma O.
Hirsch, Russel
Fineman, Jeffrey
Abman, Steven H.
Building a dedicated pediatric pulmonary hypertension program: A consensus statement from the pediatric pulmonary hypertension network
title Building a dedicated pediatric pulmonary hypertension program: A consensus statement from the pediatric pulmonary hypertension network
title_full Building a dedicated pediatric pulmonary hypertension program: A consensus statement from the pediatric pulmonary hypertension network
title_fullStr Building a dedicated pediatric pulmonary hypertension program: A consensus statement from the pediatric pulmonary hypertension network
title_full_unstemmed Building a dedicated pediatric pulmonary hypertension program: A consensus statement from the pediatric pulmonary hypertension network
title_short Building a dedicated pediatric pulmonary hypertension program: A consensus statement from the pediatric pulmonary hypertension network
title_sort building a dedicated pediatric pulmonary hypertension program: a consensus statement from the pediatric pulmonary hypertension network
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9052968/
https://www.ncbi.nlm.nih.gov/pubmed/35506071
http://dx.doi.org/10.1002/pul2.12031
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