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The Impact of COVID-19 on the Health and Experience of the Carers of Older Family Members Living with Dementia: An Italian–Hungarian Comparative Study

This quantitative study (n = 370) compares the pandemic-related experiences of the family carers of older people living with dementia during the first wave of the pandemic, in two countries with different care regimes: Italy (Mediterranean) and Hungary (Eastern European). It aims at answering the fo...

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Autores principales: Kostyál, László Árpád, Széman, Zsuzsa, Almási, Virág Erzsébet, Fabbietti, Paolo, Quattrini, Sabrina, Socci, Marco, Gagliardi, Cristina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9104228/
https://www.ncbi.nlm.nih.gov/pubmed/35564723
http://dx.doi.org/10.3390/ijerph19095329
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author Kostyál, László Árpád
Széman, Zsuzsa
Almási, Virág Erzsébet
Fabbietti, Paolo
Quattrini, Sabrina
Socci, Marco
Gagliardi, Cristina
author_facet Kostyál, László Árpád
Széman, Zsuzsa
Almási, Virág Erzsébet
Fabbietti, Paolo
Quattrini, Sabrina
Socci, Marco
Gagliardi, Cristina
author_sort Kostyál, László Árpád
collection PubMed
description This quantitative study (n = 370) compares the pandemic-related experiences of the family carers of older people living with dementia during the first wave of the pandemic, in two countries with different care regimes: Italy (Mediterranean) and Hungary (Eastern European). It aims at answering the following research questions: (1) How did the pandemic affect the subjective health of carers, and what were their experiences with care-related worries and workload? (2) What factors significantly predicted negative changes in these experiences? (3) What were carers’ main difficulties during the first pandemic wave? Results have shown that carers in both samples reported a worsening in mental health (Italy/Hungary: M = 2.25/2.55, SD = 0.93/0.99), and Italian carers also in general health (M = 2.54, SD = 0.98) (on a scale of 1 to 5, with values under “3” representing deterioration). Carers in both samples experienced high worry levels (Italy/Hungary: M = 4.2/3.7, SD = 0.93/0.89) and feeling overwhelmed with care tasks (M = 3.2/3.7, SD = 1.3/1.3) (on a scale of 1 to 5, higher values representing higher worry/work overload). In regression models, all of the above negative experiences were predicted by a combination of factors. Two of these factors stood out in importance due to being a predictor of more than one type of negative experience: a decline in the carer–care receiver relationship, predicting work overload, as well as general and mental health deterioration and being the child of the care receiver, predicting both high worry and subjective work overload. The top five encountered problems were the unavailability of medical and social care, difficulties with shopping (medicine included), restricted freedom, isolation, and anxiety.
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spelling pubmed-91042282022-05-14 The Impact of COVID-19 on the Health and Experience of the Carers of Older Family Members Living with Dementia: An Italian–Hungarian Comparative Study Kostyál, László Árpád Széman, Zsuzsa Almási, Virág Erzsébet Fabbietti, Paolo Quattrini, Sabrina Socci, Marco Gagliardi, Cristina Int J Environ Res Public Health Article This quantitative study (n = 370) compares the pandemic-related experiences of the family carers of older people living with dementia during the first wave of the pandemic, in two countries with different care regimes: Italy (Mediterranean) and Hungary (Eastern European). It aims at answering the following research questions: (1) How did the pandemic affect the subjective health of carers, and what were their experiences with care-related worries and workload? (2) What factors significantly predicted negative changes in these experiences? (3) What were carers’ main difficulties during the first pandemic wave? Results have shown that carers in both samples reported a worsening in mental health (Italy/Hungary: M = 2.25/2.55, SD = 0.93/0.99), and Italian carers also in general health (M = 2.54, SD = 0.98) (on a scale of 1 to 5, with values under “3” representing deterioration). Carers in both samples experienced high worry levels (Italy/Hungary: M = 4.2/3.7, SD = 0.93/0.89) and feeling overwhelmed with care tasks (M = 3.2/3.7, SD = 1.3/1.3) (on a scale of 1 to 5, higher values representing higher worry/work overload). In regression models, all of the above negative experiences were predicted by a combination of factors. Two of these factors stood out in importance due to being a predictor of more than one type of negative experience: a decline in the carer–care receiver relationship, predicting work overload, as well as general and mental health deterioration and being the child of the care receiver, predicting both high worry and subjective work overload. The top five encountered problems were the unavailability of medical and social care, difficulties with shopping (medicine included), restricted freedom, isolation, and anxiety. MDPI 2022-04-27 /pmc/articles/PMC9104228/ /pubmed/35564723 http://dx.doi.org/10.3390/ijerph19095329 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Kostyál, László Árpád
Széman, Zsuzsa
Almási, Virág Erzsébet
Fabbietti, Paolo
Quattrini, Sabrina
Socci, Marco
Gagliardi, Cristina
The Impact of COVID-19 on the Health and Experience of the Carers of Older Family Members Living with Dementia: An Italian–Hungarian Comparative Study
title The Impact of COVID-19 on the Health and Experience of the Carers of Older Family Members Living with Dementia: An Italian–Hungarian Comparative Study
title_full The Impact of COVID-19 on the Health and Experience of the Carers of Older Family Members Living with Dementia: An Italian–Hungarian Comparative Study
title_fullStr The Impact of COVID-19 on the Health and Experience of the Carers of Older Family Members Living with Dementia: An Italian–Hungarian Comparative Study
title_full_unstemmed The Impact of COVID-19 on the Health and Experience of the Carers of Older Family Members Living with Dementia: An Italian–Hungarian Comparative Study
title_short The Impact of COVID-19 on the Health and Experience of the Carers of Older Family Members Living with Dementia: An Italian–Hungarian Comparative Study
title_sort impact of covid-19 on the health and experience of the carers of older family members living with dementia: an italian–hungarian comparative study
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9104228/
https://www.ncbi.nlm.nih.gov/pubmed/35564723
http://dx.doi.org/10.3390/ijerph19095329
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