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Challenges and opportunities in conducting research with older adults with dementia during COVID‐19 and beyond

The coronavirus disease 19 (COVID‐19) pandemic has created significant and new challenges for the conduct of clinical research involving older adults with Alzheimer's disease and related dementias (ADRD). It has also stimulated positive adaptations in methods for engaging older adults with ADRD...

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Autores principales: Sharma, Rashmi K., Teng, Andrew, Asirot, Mary Grace, Taylor, Jean O., Borson, Soo, Turner, Anne M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley & Sons, Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9106837/
https://www.ncbi.nlm.nih.gov/pubmed/35285942
http://dx.doi.org/10.1111/jgs.17750
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author Sharma, Rashmi K.
Teng, Andrew
Asirot, Mary Grace
Taylor, Jean O.
Borson, Soo
Turner, Anne M.
author_facet Sharma, Rashmi K.
Teng, Andrew
Asirot, Mary Grace
Taylor, Jean O.
Borson, Soo
Turner, Anne M.
author_sort Sharma, Rashmi K.
collection PubMed
description The coronavirus disease 19 (COVID‐19) pandemic has created significant and new challenges for the conduct of clinical research involving older adults with Alzheimer's disease and related dementias (ADRD). It has also stimulated positive adaptations in methods for engaging older adults with ADRD in research, particularly through the increased availability of virtual platforms. In this paper, we describe how we adapted standard in‐person participant recruitment and qualitative data collection methods for virtual use in a study of decision‐making experiences in older adults with ADRD. We describe key considerations for the use of technology and virtual platforms and discuss our experience with using recommended strategies to recruit a diverse sample of older adults. We highlight the need for research funding that supports the community‐based organizations on which improving equity in ADRD research participation often depends.
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spelling pubmed-91068372022-05-18 Challenges and opportunities in conducting research with older adults with dementia during COVID‐19 and beyond Sharma, Rashmi K. Teng, Andrew Asirot, Mary Grace Taylor, Jean O. Borson, Soo Turner, Anne M. J Am Geriatr Soc COVID‐19‐Related Content The coronavirus disease 19 (COVID‐19) pandemic has created significant and new challenges for the conduct of clinical research involving older adults with Alzheimer's disease and related dementias (ADRD). It has also stimulated positive adaptations in methods for engaging older adults with ADRD in research, particularly through the increased availability of virtual platforms. In this paper, we describe how we adapted standard in‐person participant recruitment and qualitative data collection methods for virtual use in a study of decision‐making experiences in older adults with ADRD. We describe key considerations for the use of technology and virtual platforms and discuss our experience with using recommended strategies to recruit a diverse sample of older adults. We highlight the need for research funding that supports the community‐based organizations on which improving equity in ADRD research participation often depends. John Wiley & Sons, Inc. 2022-03-21 2022-05 /pmc/articles/PMC9106837/ /pubmed/35285942 http://dx.doi.org/10.1111/jgs.17750 Text en © 2022 The American Geriatrics Society. This article is being made freely available through PubMed Central as part of the COVID-19 public health emergency response. It can be used for unrestricted research re-use and analysis in any form or by any means with acknowledgement of the original source, for the duration of the public health emergency.
spellingShingle COVID‐19‐Related Content
Sharma, Rashmi K.
Teng, Andrew
Asirot, Mary Grace
Taylor, Jean O.
Borson, Soo
Turner, Anne M.
Challenges and opportunities in conducting research with older adults with dementia during COVID‐19 and beyond
title Challenges and opportunities in conducting research with older adults with dementia during COVID‐19 and beyond
title_full Challenges and opportunities in conducting research with older adults with dementia during COVID‐19 and beyond
title_fullStr Challenges and opportunities in conducting research with older adults with dementia during COVID‐19 and beyond
title_full_unstemmed Challenges and opportunities in conducting research with older adults with dementia during COVID‐19 and beyond
title_short Challenges and opportunities in conducting research with older adults with dementia during COVID‐19 and beyond
title_sort challenges and opportunities in conducting research with older adults with dementia during covid‐19 and beyond
topic COVID‐19‐Related Content
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9106837/
https://www.ncbi.nlm.nih.gov/pubmed/35285942
http://dx.doi.org/10.1111/jgs.17750
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