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How mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study
INTRODUCTION: Caregiver burden is a complex construct that depends heavily on the context and culture of the community in which care takes place. This study aimed to explore the lived experience of being mothers of a child with type 1 diabetes aged 6 to 18 years. MATERIALS AND METHODS: We used a qua...
Autores principales: | , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9107259/ https://www.ncbi.nlm.nih.gov/pubmed/35562744 http://dx.doi.org/10.1186/s12902-022-01045-z |
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author | Moghadam, Yusef Haghighi Zeinaly, Zhaleh Alhani, Fatemah |
author_facet | Moghadam, Yusef Haghighi Zeinaly, Zhaleh Alhani, Fatemah |
author_sort | Moghadam, Yusef Haghighi |
collection | PubMed |
description | INTRODUCTION: Caregiver burden is a complex construct that depends heavily on the context and culture of the community in which care takes place. This study aimed to explore the lived experience of being mothers of a child with type 1 diabetes aged 6 to 18 years. MATERIALS AND METHODS: We used a qualitative methodology utilizing conventional content analysis. We conducted 24 interviews with 20 mothers who had a child with type 1 diabetes aged 6 to 17 years. RESULTS: The mean age of mothers and children were 36.3 and 12.3 years, respectively. The mean of years with the disease was 4.3 years. Thirteen children were girls. The essential theme was coping with the burden of care through personalized coping and active acquisition of social support. The main theme consists of four sub-themes including Crisis in the family and burden of care, Losing the family equilibrium, Personalized coping strategies, and Active acquisition of social support. Mothers used personalized strategies and every support they could get to reach their aim. CONCLUSIONS: Families of children with type 1 diabetes need extensive and personalized care plans. |
format | Online Article Text |
id | pubmed-9107259 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-91072592022-05-15 How mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study Moghadam, Yusef Haghighi Zeinaly, Zhaleh Alhani, Fatemah BMC Endocr Disord Research INTRODUCTION: Caregiver burden is a complex construct that depends heavily on the context and culture of the community in which care takes place. This study aimed to explore the lived experience of being mothers of a child with type 1 diabetes aged 6 to 18 years. MATERIALS AND METHODS: We used a qualitative methodology utilizing conventional content analysis. We conducted 24 interviews with 20 mothers who had a child with type 1 diabetes aged 6 to 17 years. RESULTS: The mean age of mothers and children were 36.3 and 12.3 years, respectively. The mean of years with the disease was 4.3 years. Thirteen children were girls. The essential theme was coping with the burden of care through personalized coping and active acquisition of social support. The main theme consists of four sub-themes including Crisis in the family and burden of care, Losing the family equilibrium, Personalized coping strategies, and Active acquisition of social support. Mothers used personalized strategies and every support they could get to reach their aim. CONCLUSIONS: Families of children with type 1 diabetes need extensive and personalized care plans. BioMed Central 2022-05-13 /pmc/articles/PMC9107259/ /pubmed/35562744 http://dx.doi.org/10.1186/s12902-022-01045-z Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Moghadam, Yusef Haghighi Zeinaly, Zhaleh Alhani, Fatemah How mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study |
title | How mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study |
title_full | How mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study |
title_fullStr | How mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study |
title_full_unstemmed | How mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study |
title_short | How mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study |
title_sort | how mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study |
topic | Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9107259/ https://www.ncbi.nlm.nih.gov/pubmed/35562744 http://dx.doi.org/10.1186/s12902-022-01045-z |
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