Meeting ethical challenges with authenticity when engaging patients and families in end-of-life and palliative care research: a qualitative study

BACKGROUND: Delivering high quality, patient- and family-centered care depends upon high quality end-of-life and palliative care (EOLPC) research. Engaging patients and families as advisors, partners, or co-investigators throughout the research lifecycle is widely regarded as critical to ensuring hi...

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Detalles Bibliográficos
Autores principales: DeCamp, Matthew, Alasmar, Ahmed, Fischer, Stacy, Kutner, Jean S.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9108140/
https://www.ncbi.nlm.nih.gov/pubmed/35578262
http://dx.doi.org/10.1186/s12904-022-00964-x

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