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The Rare Disease Research Scholars Program: A training curriculum for clinical researchers with mixed methods evaluation study

Rare disease clinician investigators are essential to ensure appropriate diagnosis, care, and treatment for the rapidly growing rare disease population. As these researchers are spread across many specialties, learning the unique skill set for rare disease research (RDR) can be a hurdle and may hind...

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Detalles Bibliográficos
Autores principales: Regier, Debra S., Weaver, Jennifer A., Cheng, Nancy, Batshaw, Mark L., Ottolini, Mary, Shy, Michael E., Summar, Marshall L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: IOS Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9108859/
https://www.ncbi.nlm.nih.gov/pubmed/35601643
http://dx.doi.org/10.3233/TRD-210051