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Racial Differences in Advance Care Planning and Preferences for End-of-Life Care: Has COVID-19 Changed Anything? (RP312)
OUTCOMES: 1. Determine whether the COVID-19 pandemic changed patients’ perceived willingness to talk about advance care planning and preferences for care in the event of severe COVID-19 illness 2. Determine whether the preferences for care changed during COVID-19 for Black and White patients IMPORTA...
Autores principales: | , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Published by Elsevier Inc.
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9110290/ http://dx.doi.org/10.1016/j.jpainsymman.2022.04.028 |
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author | Gangavati, Anupama Olsen, Maren Ejem, Deborah Rhodes, Ramona Dolor, Rowena Durant, Raegan Bodiford, DeAndra Barrett, Nadine Williams, Sherone Thorne, Gabriel Bethea, Kenisha Johnson, Kimberly Ruffin, Felicia |
author_facet | Gangavati, Anupama Olsen, Maren Ejem, Deborah Rhodes, Ramona Dolor, Rowena Durant, Raegan Bodiford, DeAndra Barrett, Nadine Williams, Sherone Thorne, Gabriel Bethea, Kenisha Johnson, Kimberly Ruffin, Felicia |
author_sort | Gangavati, Anupama |
collection | PubMed |
description | OUTCOMES: 1. Determine whether the COVID-19 pandemic changed patients’ perceived willingness to talk about advance care planning and preferences for care in the event of severe COVID-19 illness 2. Determine whether the preferences for care changed during COVID-19 for Black and White patients IMPORTANCE: Rates of advance care planning (ACP) are lower and preferences for life-prolong therapies are higher among Black patients than White patients. OBJECTIVE: To examine whether the COVID-19 pandemic, which has disproportionately affected Black patients, has changed racial differences in beliefs about ACP or preferences for end-of-life (EOL) care. METHODS: We used data from EQUAL ACP, a comparative effectiveness trial of 2 ACP interventions in seriously ill patients ≥65 years old seen in 10 primary care clinics in the South. We asked about COVID-19-related ACP and preferences for care. We used chi-square tests to examine racial differences in responses. RESULTS: The sample included 164 Black and 109 White patients. The mean age was 75 years; 63% were female. Similar proportions of Black and White patients (15.9% and 16.8%) reported being “more willing to talk to family/friends/doctors” about wishes for medical care as a result of the pandemic, although most (81.7% and 82.6%) reported “no change in willingness” (p = 0.85). A greater proportion of White than Black patients (26.6% vs. 20.7%) reported talking to family or friends about their wishes for COVID-19-related medical care. There were significant racial differences (p < .001) in EOL care preferences in the event of severe COVID illness. Black patients (36% vs. 12%) were more likely to want all treatments to keep them alive as long as possible, and White patients (75% vs. 55%) were more likely to only want a time-limited trial of life-prolonging measures. CONCLUSION: In this sample, most patients reported that the COVID-19 pandemic has not changed their wiliness to participate in ACP discussions. Black patients were more likely than White patients to want life-prolonging measures in the event of severe COVID illness. IMPACT: Further studies should identify disparities in the quality of palliative care for patients with COVID-19 and determine potential drivers. |
format | Online Article Text |
id | pubmed-9110290 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Published by Elsevier Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-91102902022-05-17 Racial Differences in Advance Care Planning and Preferences for End-of-Life Care: Has COVID-19 Changed Anything? (RP312) Gangavati, Anupama Olsen, Maren Ejem, Deborah Rhodes, Ramona Dolor, Rowena Durant, Raegan Bodiford, DeAndra Barrett, Nadine Williams, Sherone Thorne, Gabriel Bethea, Kenisha Johnson, Kimberly Ruffin, Felicia J Pain Symptom Manage Article OUTCOMES: 1. Determine whether the COVID-19 pandemic changed patients’ perceived willingness to talk about advance care planning and preferences for care in the event of severe COVID-19 illness 2. Determine whether the preferences for care changed during COVID-19 for Black and White patients IMPORTANCE: Rates of advance care planning (ACP) are lower and preferences for life-prolong therapies are higher among Black patients than White patients. OBJECTIVE: To examine whether the COVID-19 pandemic, which has disproportionately affected Black patients, has changed racial differences in beliefs about ACP or preferences for end-of-life (EOL) care. METHODS: We used data from EQUAL ACP, a comparative effectiveness trial of 2 ACP interventions in seriously ill patients ≥65 years old seen in 10 primary care clinics in the South. We asked about COVID-19-related ACP and preferences for care. We used chi-square tests to examine racial differences in responses. RESULTS: The sample included 164 Black and 109 White patients. The mean age was 75 years; 63% were female. Similar proportions of Black and White patients (15.9% and 16.8%) reported being “more willing to talk to family/friends/doctors” about wishes for medical care as a result of the pandemic, although most (81.7% and 82.6%) reported “no change in willingness” (p = 0.85). A greater proportion of White than Black patients (26.6% vs. 20.7%) reported talking to family or friends about their wishes for COVID-19-related medical care. There were significant racial differences (p < .001) in EOL care preferences in the event of severe COVID illness. Black patients (36% vs. 12%) were more likely to want all treatments to keep them alive as long as possible, and White patients (75% vs. 55%) were more likely to only want a time-limited trial of life-prolonging measures. CONCLUSION: In this sample, most patients reported that the COVID-19 pandemic has not changed their wiliness to participate in ACP discussions. Black patients were more likely than White patients to want life-prolonging measures in the event of severe COVID illness. IMPACT: Further studies should identify disparities in the quality of palliative care for patients with COVID-19 and determine potential drivers. Published by Elsevier Inc. 2022-06 2022-05-17 /pmc/articles/PMC9110290/ http://dx.doi.org/10.1016/j.jpainsymman.2022.04.028 Text en Copyright © 2022 Published by Elsevier Inc. Since January 2020 Elsevier has created a COVID-19 resource centre with free information in English and Mandarin on the novel coronavirus COVID-19. The COVID-19 resource centre is hosted on Elsevier Connect, the company's public news and information website. Elsevier hereby grants permission to make all its COVID-19-related research that is available on the COVID-19 resource centre - including this research content - immediately available in PubMed Central and other publicly funded repositories, such as the WHO COVID database with rights for unrestricted research re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for free by Elsevier for as long as the COVID-19 resource centre remains active. |
spellingShingle | Article Gangavati, Anupama Olsen, Maren Ejem, Deborah Rhodes, Ramona Dolor, Rowena Durant, Raegan Bodiford, DeAndra Barrett, Nadine Williams, Sherone Thorne, Gabriel Bethea, Kenisha Johnson, Kimberly Ruffin, Felicia Racial Differences in Advance Care Planning and Preferences for End-of-Life Care: Has COVID-19 Changed Anything? (RP312) |
title | Racial Differences in Advance Care Planning and Preferences for End-of-Life Care: Has COVID-19 Changed Anything? (RP312) |
title_full | Racial Differences in Advance Care Planning and Preferences for End-of-Life Care: Has COVID-19 Changed Anything? (RP312) |
title_fullStr | Racial Differences in Advance Care Planning and Preferences for End-of-Life Care: Has COVID-19 Changed Anything? (RP312) |
title_full_unstemmed | Racial Differences in Advance Care Planning and Preferences for End-of-Life Care: Has COVID-19 Changed Anything? (RP312) |
title_short | Racial Differences in Advance Care Planning and Preferences for End-of-Life Care: Has COVID-19 Changed Anything? (RP312) |
title_sort | racial differences in advance care planning and preferences for end-of-life care: has covid-19 changed anything? (rp312) |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9110290/ http://dx.doi.org/10.1016/j.jpainsymman.2022.04.028 |
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