‘This battle, between your gut feeling and your mind. Try to find the right balance’: Parental experiences of children with spinal muscular atrophy during COVID‐19 pandemic

AIMS: Parents of children with spinal muscular atrophy (SMA) often struggle with the all‐consuming nature of the demands of caring for a child with substantial physical needs. Our aim was to explore experiences, challenges and needs of parents of a child with SMA in a COVID‐19 pandemic situation. ME...

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Detalles Bibliográficos
Autores principales: Oude Lansink, Irene L. B., van Stam, P. C. Carolien, Schafrat, Eline C. W. M., Mocking, Manouk, Prins, S. Dido, Beelen, Anita, Cuppen, Inge, van der Pol, W. Ludo, Gorter, Jan Willem, Ketelaar, Marjolijn
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Research Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9111832/
https://www.ncbi.nlm.nih.gov/pubmed/35445450
http://dx.doi.org/10.1111/cch.13014

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