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Scaling out a palliative compassionate community innovation: Nav-CARE

BACKGROUND: There is an urgent need for community-based interventions that can be scaled up to meet the growing demand for palliative care. The purpose of this study was to scale out a volunteer navigation intervention called Nav-CARE by replicating the program in multiple contexts and evaluating fe...

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Autores principales: Pesut, Barbara, Duggleby, Wendy, Warner, Grace, Ghosh, Sunita, Bruce, Paxton, Dunlop, Rowena, Puurveen, Gloria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9112317/
https://www.ncbi.nlm.nih.gov/pubmed/35592240
http://dx.doi.org/10.1177/26323524221095102
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author Pesut, Barbara
Duggleby, Wendy
Warner, Grace
Ghosh, Sunita
Bruce, Paxton
Dunlop, Rowena
Puurveen, Gloria
author_facet Pesut, Barbara
Duggleby, Wendy
Warner, Grace
Ghosh, Sunita
Bruce, Paxton
Dunlop, Rowena
Puurveen, Gloria
author_sort Pesut, Barbara
collection PubMed
description BACKGROUND: There is an urgent need for community-based interventions that can be scaled up to meet the growing demand for palliative care. The purpose of this study was to scale out a volunteer navigation intervention called Nav-CARE by replicating the program in multiple contexts and evaluating feasibility, acceptability, sustainability, and impact. METHODS: This was a scale-out implementation and mixed-method evaluation study. Nav-CARE was implemented in 12 hospice and 3 nonhospice community-based organizations spanning five provinces in Canada. Volunteers visited clients in the home approximately every 2 weeks for 1 year with some modifications required by the COVID-19 public health restrictions. Qualitative evaluation data were collected from key informants (n = 26), clients/family caregivers (n = 57), and volunteers (n = 86) using semistructured interviews. Quantitative evaluation data included volunteer self-efficacy, satisfaction, and quality of life, and client engagement and quality of life. FINDINGS: Successful implementation was influenced by organizational capacity, stable and engaged leadership, a targeted client population, and skillful messaging. Recruitment of clients was the most significant barrier to implementation. Clients reported statistically significant improvements in feeling they had someone to turn to, knowing the services available to help them in their community, being involved in things that were important to them, and having confidence in taking care of their illness. Improvements in clients’ quality of life were reported in the qualitative data, although no statistically significant gains were reported on the quality of life measure. Volunteers reported good self-efficacy and satisfaction in their role. CONCLUSION: The feasibility, acceptability, and sustainability of the program were largely dependent on strong intraorganizational leadership. Volunteers reported that their involvement in Nav-CARE enabled them to engage in ongoing learning and have a meaningful and relational role with clients. Clients and families described the positive impact of a volunteer on their engagement and quality of life.
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spelling pubmed-91123172022-05-18 Scaling out a palliative compassionate community innovation: Nav-CARE Pesut, Barbara Duggleby, Wendy Warner, Grace Ghosh, Sunita Bruce, Paxton Dunlop, Rowena Puurveen, Gloria Palliat Care Soc Pract Original Research BACKGROUND: There is an urgent need for community-based interventions that can be scaled up to meet the growing demand for palliative care. The purpose of this study was to scale out a volunteer navigation intervention called Nav-CARE by replicating the program in multiple contexts and evaluating feasibility, acceptability, sustainability, and impact. METHODS: This was a scale-out implementation and mixed-method evaluation study. Nav-CARE was implemented in 12 hospice and 3 nonhospice community-based organizations spanning five provinces in Canada. Volunteers visited clients in the home approximately every 2 weeks for 1 year with some modifications required by the COVID-19 public health restrictions. Qualitative evaluation data were collected from key informants (n = 26), clients/family caregivers (n = 57), and volunteers (n = 86) using semistructured interviews. Quantitative evaluation data included volunteer self-efficacy, satisfaction, and quality of life, and client engagement and quality of life. FINDINGS: Successful implementation was influenced by organizational capacity, stable and engaged leadership, a targeted client population, and skillful messaging. Recruitment of clients was the most significant barrier to implementation. Clients reported statistically significant improvements in feeling they had someone to turn to, knowing the services available to help them in their community, being involved in things that were important to them, and having confidence in taking care of their illness. Improvements in clients’ quality of life were reported in the qualitative data, although no statistically significant gains were reported on the quality of life measure. Volunteers reported good self-efficacy and satisfaction in their role. CONCLUSION: The feasibility, acceptability, and sustainability of the program were largely dependent on strong intraorganizational leadership. Volunteers reported that their involvement in Nav-CARE enabled them to engage in ongoing learning and have a meaningful and relational role with clients. Clients and families described the positive impact of a volunteer on their engagement and quality of life. SAGE Publications 2022-05-13 /pmc/articles/PMC9112317/ /pubmed/35592240 http://dx.doi.org/10.1177/26323524221095102 Text en © The Author(s), 2022 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Original Research
Pesut, Barbara
Duggleby, Wendy
Warner, Grace
Ghosh, Sunita
Bruce, Paxton
Dunlop, Rowena
Puurveen, Gloria
Scaling out a palliative compassionate community innovation: Nav-CARE
title Scaling out a palliative compassionate community innovation: Nav-CARE
title_full Scaling out a palliative compassionate community innovation: Nav-CARE
title_fullStr Scaling out a palliative compassionate community innovation: Nav-CARE
title_full_unstemmed Scaling out a palliative compassionate community innovation: Nav-CARE
title_short Scaling out a palliative compassionate community innovation: Nav-CARE
title_sort scaling out a palliative compassionate community innovation: nav-care
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9112317/
https://www.ncbi.nlm.nih.gov/pubmed/35592240
http://dx.doi.org/10.1177/26323524221095102
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