Cargando…
The State of Patient-Reported Outcome Measures for Pediatric Patients with Inherited Retinal Disease
Patient-reported outcome measures (PROMs) are questionnaires that assess health outcomes meaningful to the patient. PROMs have multiple applications, such as supporting clinicians’ decision-making for patient care, understanding the impact of disease on patient functioning, and evaluating the effica...
Autores principales: | Selvan, Kavin, Abalem, Maria F., Lacy, Gabrielle D., Vincent, Ajoy, Héon, Elise |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Springer Healthcare
2022
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9114271/ https://www.ncbi.nlm.nih.gov/pubmed/35499804 http://dx.doi.org/10.1007/s40123-022-00514-x |
Ejemplares similares
-
Contrast sensitivity deficits in patients with mutation-proven inherited retinal degenerations
por: Alahmadi, Badr O., et al.
Publicado: (2018) -
Inherited Retinal Degeneration: Genetics, Disease Characterization, and Outcome Measures
por: Khan, Naheed W., et al.
Publicado: (2017) -
Mechanisms Underlying Rare Inherited Pediatric Retinal Vascular Diseases: FEVR, Norrie Disease, Persistent Fetal Vascular Syndrome
por: Le, Vincent, et al.
Publicado: (2023) -
Clinical and Genetic Evaluation of a Cohort of Pediatric Patients with Severe Inherited Retinal Dystrophies
por: Di Iorio, Valentina, et al.
Publicado: (2017) -
Inherited Retinal Diseases
por: Ben-Yosef, Tamar
Publicado: (2022)