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Implementation of the World Health Organization Global Burn Registry: Lessons Learned

Burn injuries are a major cause of death and disability globally; however, the true epidemiologic burden is underestimated given the limited and fragmented availability of high-quality burn injury data from many regions. To address this gap, the World Health Organization (WHO) Global Burn Registry (...

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Autores principales: Hebron, Caitlin, Mehta, Kajal, Stewart, Barclay, Price, Patricia, Potokar, Tom
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Ubiquity Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9122007/
https://www.ncbi.nlm.nih.gov/pubmed/35646613
http://dx.doi.org/10.5334/aogh.3669
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author Hebron, Caitlin
Mehta, Kajal
Stewart, Barclay
Price, Patricia
Potokar, Tom
author_facet Hebron, Caitlin
Mehta, Kajal
Stewart, Barclay
Price, Patricia
Potokar, Tom
author_sort Hebron, Caitlin
collection PubMed
description Burn injuries are a major cause of death and disability globally; however, the true epidemiologic burden is underestimated given the limited and fragmented availability of high-quality burn injury data from many regions. To address this gap, the World Health Organization (WHO) Global Burn Registry (GBR)—a minimum dataset aligned with a centralized registry—was officially launched in 2018 to facilitate hospital-level collection of key prevention, care, and outcome data from burn-injured patients around the world in a standardized manner. However, uptake and use of GBR has been low and inconsistent. Therefore, we aimed to identify and understand the barriers and facilitators to the implementation of the GBR to inform the development of a web-based GBR implementation guide through the Centre for Global Burn Injury Policy and Research and Interburns. We designed and conducted web-based surveys with “GBR users” and “GBR non-users” using purposive sampling. Themes of identified barriers and facilitators focused on awareness of the GBR, stakeholder buy-in, resource constraints, process management, and utility of the registry. The lessons learned could support current and future GBR users to promote and maximize the use of the GBR. To achieve the GBR’s full potential in global burn injury prevention and care, engagement with the GBR should be enhanced through education and promotion, development of a community of practice, tools for data utilization and quality improvement, and periodic re-evaluation.
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spelling pubmed-91220072022-05-27 Implementation of the World Health Organization Global Burn Registry: Lessons Learned Hebron, Caitlin Mehta, Kajal Stewart, Barclay Price, Patricia Potokar, Tom Ann Glob Health Viewpoint Burn injuries are a major cause of death and disability globally; however, the true epidemiologic burden is underestimated given the limited and fragmented availability of high-quality burn injury data from many regions. To address this gap, the World Health Organization (WHO) Global Burn Registry (GBR)—a minimum dataset aligned with a centralized registry—was officially launched in 2018 to facilitate hospital-level collection of key prevention, care, and outcome data from burn-injured patients around the world in a standardized manner. However, uptake and use of GBR has been low and inconsistent. Therefore, we aimed to identify and understand the barriers and facilitators to the implementation of the GBR to inform the development of a web-based GBR implementation guide through the Centre for Global Burn Injury Policy and Research and Interburns. We designed and conducted web-based surveys with “GBR users” and “GBR non-users” using purposive sampling. Themes of identified barriers and facilitators focused on awareness of the GBR, stakeholder buy-in, resource constraints, process management, and utility of the registry. The lessons learned could support current and future GBR users to promote and maximize the use of the GBR. To achieve the GBR’s full potential in global burn injury prevention and care, engagement with the GBR should be enhanced through education and promotion, development of a community of practice, tools for data utilization and quality improvement, and periodic re-evaluation. Ubiquity Press 2022-05-18 /pmc/articles/PMC9122007/ /pubmed/35646613 http://dx.doi.org/10.5334/aogh.3669 Text en Copyright: © 2022 The Author(s) https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution 4.0 International License (CC-BY 4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. See http://creativecommons.org/licenses/by/4.0/.
spellingShingle Viewpoint
Hebron, Caitlin
Mehta, Kajal
Stewart, Barclay
Price, Patricia
Potokar, Tom
Implementation of the World Health Organization Global Burn Registry: Lessons Learned
title Implementation of the World Health Organization Global Burn Registry: Lessons Learned
title_full Implementation of the World Health Organization Global Burn Registry: Lessons Learned
title_fullStr Implementation of the World Health Organization Global Burn Registry: Lessons Learned
title_full_unstemmed Implementation of the World Health Organization Global Burn Registry: Lessons Learned
title_short Implementation of the World Health Organization Global Burn Registry: Lessons Learned
title_sort implementation of the world health organization global burn registry: lessons learned
topic Viewpoint
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9122007/
https://www.ncbi.nlm.nih.gov/pubmed/35646613
http://dx.doi.org/10.5334/aogh.3669
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