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The Tell me tool: The development and feasibility of a tool for person‐centred infertility care

BACKGROUND: An important—and often missing—element of person‐centred care is the inclusion of individual patients' values and preferences. This is challenging but especially important for high‐burden fertility treatments. We describe the development of a clinical tool that aims to facilitate th...

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Autores principales: Verkerk, Eva W., Rake, Ester A., Braat, Didi D. M., Nelen, Willianne L. D. M., Aarts, Johanna W. M., Kremer, Jan A. M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9122469/
https://www.ncbi.nlm.nih.gov/pubmed/35218288
http://dx.doi.org/10.1111/hex.13455
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author Verkerk, Eva W.
Rake, Ester A.
Braat, Didi D. M.
Nelen, Willianne L. D. M.
Aarts, Johanna W. M.
Kremer, Jan A. M.
author_facet Verkerk, Eva W.
Rake, Ester A.
Braat, Didi D. M.
Nelen, Willianne L. D. M.
Aarts, Johanna W. M.
Kremer, Jan A. M.
author_sort Verkerk, Eva W.
collection PubMed
description BACKGROUND: An important—and often missing—element of person‐centred care is the inclusion of individual patients' values and preferences. This is challenging but especially important for high‐burden fertility treatments. We describe the development of a clinical tool that aims to facilitate the delivery of person‐centred fertility care by giving insight into the patients' values and preferences. METHODS: We developed the Tell me tool following the three principles of user‐centred design: (1) early and continual focus on users; (2) iterative design; (3) measurement of user behaviour. Accordingly, our methods consisted of three phases: (1) conducting semi‐structured interviews with 18 couples undergoing fertility treatment, followed by a consensus meeting with relevant stakeholders; (2) performing seven iterative improvement rounds; (3) testing the feasibility of the tool in 10 couples. RESULTS: The Tell me tool consists of a ranking assignment of 13 themes and two open‐ended questions. These themes relate to the couples' wellbeing and experience of the treatment, such as mental health and shared decision making. The open‐ended questions ask them to write down what matters most to them. The field test showed variation between the individual patients' answers. The tool proved to highlight what is important to the individual patient and gives insight into patients' personal contexts. CONCLUSIONS: We developed a tool that gives insight into the values and preferences of the individual patient. The tool seems feasible for facilitating person‐centred fertility care. PATIENT OR PUBLIC CONTRIBUTION: The tool was developed with a user‐centred design that strongly involved patients.
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spelling pubmed-91224692022-06-01 The Tell me tool: The development and feasibility of a tool for person‐centred infertility care Verkerk, Eva W. Rake, Ester A. Braat, Didi D. M. Nelen, Willianne L. D. M. Aarts, Johanna W. M. Kremer, Jan A. M. Health Expect Original Articles BACKGROUND: An important—and often missing—element of person‐centred care is the inclusion of individual patients' values and preferences. This is challenging but especially important for high‐burden fertility treatments. We describe the development of a clinical tool that aims to facilitate the delivery of person‐centred fertility care by giving insight into the patients' values and preferences. METHODS: We developed the Tell me tool following the three principles of user‐centred design: (1) early and continual focus on users; (2) iterative design; (3) measurement of user behaviour. Accordingly, our methods consisted of three phases: (1) conducting semi‐structured interviews with 18 couples undergoing fertility treatment, followed by a consensus meeting with relevant stakeholders; (2) performing seven iterative improvement rounds; (3) testing the feasibility of the tool in 10 couples. RESULTS: The Tell me tool consists of a ranking assignment of 13 themes and two open‐ended questions. These themes relate to the couples' wellbeing and experience of the treatment, such as mental health and shared decision making. The open‐ended questions ask them to write down what matters most to them. The field test showed variation between the individual patients' answers. The tool proved to highlight what is important to the individual patient and gives insight into patients' personal contexts. CONCLUSIONS: We developed a tool that gives insight into the values and preferences of the individual patient. The tool seems feasible for facilitating person‐centred fertility care. PATIENT OR PUBLIC CONTRIBUTION: The tool was developed with a user‐centred design that strongly involved patients. John Wiley and Sons Inc. 2022-02-26 2022-06 /pmc/articles/PMC9122469/ /pubmed/35218288 http://dx.doi.org/10.1111/hex.13455 Text en © 2022 The Authors. Health Expectations published by John Wiley & Sons Ltd. https://creativecommons.org/licenses/by/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
Verkerk, Eva W.
Rake, Ester A.
Braat, Didi D. M.
Nelen, Willianne L. D. M.
Aarts, Johanna W. M.
Kremer, Jan A. M.
The Tell me tool: The development and feasibility of a tool for person‐centred infertility care
title The Tell me tool: The development and feasibility of a tool for person‐centred infertility care
title_full The Tell me tool: The development and feasibility of a tool for person‐centred infertility care
title_fullStr The Tell me tool: The development and feasibility of a tool for person‐centred infertility care
title_full_unstemmed The Tell me tool: The development and feasibility of a tool for person‐centred infertility care
title_short The Tell me tool: The development and feasibility of a tool for person‐centred infertility care
title_sort tell me tool: the development and feasibility of a tool for person‐centred infertility care
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9122469/
https://www.ncbi.nlm.nih.gov/pubmed/35218288
http://dx.doi.org/10.1111/hex.13455
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