Cargando…

Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership

OBJECTIVE: The James Lind Alliance (JLA) offers a method for better aligning health and care agenda’s with the needs of patients, carers and clinicians by bringing them together in a Priority Setting Partnership (PSP). In this paper, we draw attention to crucial lessons learnt when establishing such...

Descripción completa

Detalles Bibliográficos
Autores principales: Jongsma, Karin Rolanda, Milota, Megan M
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9125715/
https://www.ncbi.nlm.nih.gov/pubmed/35613776
http://dx.doi.org/10.1136/bmjopen-2021-059006
_version_ 1784711994664812544
author Jongsma, Karin Rolanda
Milota, Megan M
author_facet Jongsma, Karin Rolanda
Milota, Megan M
author_sort Jongsma, Karin Rolanda
collection PubMed
description OBJECTIVE: The James Lind Alliance (JLA) offers a method for better aligning health and care agenda’s with the needs of patients, carers and clinicians by bringing them together in a Priority Setting Partnership (PSP). In this paper, we draw attention to crucial lessons learnt when establishing such a shared research agenda. KEY ARGUMENTS: Having specific strategies and plans in place for maximising dialogic processes in a PSP can help facilitate and maintain trust, innovation and equal inclusion. CONCLUSION: Eight lessons learnt have been formulated, based on our observations and reflections on the JLA PSP and our expertise on patient participation and participatory research.
format Online
Article
Text
id pubmed-9125715
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher BMJ Publishing Group
record_format MEDLINE/PubMed
spelling pubmed-91257152022-06-04 Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership Jongsma, Karin Rolanda Milota, Megan M BMJ Open Ethics OBJECTIVE: The James Lind Alliance (JLA) offers a method for better aligning health and care agenda’s with the needs of patients, carers and clinicians by bringing them together in a Priority Setting Partnership (PSP). In this paper, we draw attention to crucial lessons learnt when establishing such a shared research agenda. KEY ARGUMENTS: Having specific strategies and plans in place for maximising dialogic processes in a PSP can help facilitate and maintain trust, innovation and equal inclusion. CONCLUSION: Eight lessons learnt have been formulated, based on our observations and reflections on the JLA PSP and our expertise on patient participation and participatory research. BMJ Publishing Group 2022-05-19 /pmc/articles/PMC9125715/ /pubmed/35613776 http://dx.doi.org/10.1136/bmjopen-2021-059006 Text en © Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) .
spellingShingle Ethics
Jongsma, Karin Rolanda
Milota, Megan M
Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership
title Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership
title_full Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership
title_fullStr Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership
title_full_unstemmed Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership
title_short Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership
title_sort establishing a multistakeholder research agenda: lessons learned from a james lind alliance partnership
topic Ethics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9125715/
https://www.ncbi.nlm.nih.gov/pubmed/35613776
http://dx.doi.org/10.1136/bmjopen-2021-059006
work_keys_str_mv AT jongsmakarinrolanda establishingamultistakeholderresearchagendalessonslearnedfromajameslindalliancepartnership
AT milotameganm establishingamultistakeholderresearchagendalessonslearnedfromajameslindalliancepartnership