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Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership
OBJECTIVE: The James Lind Alliance (JLA) offers a method for better aligning health and care agenda’s with the needs of patients, carers and clinicians by bringing them together in a Priority Setting Partnership (PSP). In this paper, we draw attention to crucial lessons learnt when establishing such...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9125715/ https://www.ncbi.nlm.nih.gov/pubmed/35613776 http://dx.doi.org/10.1136/bmjopen-2021-059006 |
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author | Jongsma, Karin Rolanda Milota, Megan M |
author_facet | Jongsma, Karin Rolanda Milota, Megan M |
author_sort | Jongsma, Karin Rolanda |
collection | PubMed |
description | OBJECTIVE: The James Lind Alliance (JLA) offers a method for better aligning health and care agenda’s with the needs of patients, carers and clinicians by bringing them together in a Priority Setting Partnership (PSP). In this paper, we draw attention to crucial lessons learnt when establishing such a shared research agenda. KEY ARGUMENTS: Having specific strategies and plans in place for maximising dialogic processes in a PSP can help facilitate and maintain trust, innovation and equal inclusion. CONCLUSION: Eight lessons learnt have been formulated, based on our observations and reflections on the JLA PSP and our expertise on patient participation and participatory research. |
format | Online Article Text |
id | pubmed-9125715 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | BMJ Publishing Group |
record_format | MEDLINE/PubMed |
spelling | pubmed-91257152022-06-04 Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership Jongsma, Karin Rolanda Milota, Megan M BMJ Open Ethics OBJECTIVE: The James Lind Alliance (JLA) offers a method for better aligning health and care agenda’s with the needs of patients, carers and clinicians by bringing them together in a Priority Setting Partnership (PSP). In this paper, we draw attention to crucial lessons learnt when establishing such a shared research agenda. KEY ARGUMENTS: Having specific strategies and plans in place for maximising dialogic processes in a PSP can help facilitate and maintain trust, innovation and equal inclusion. CONCLUSION: Eight lessons learnt have been formulated, based on our observations and reflections on the JLA PSP and our expertise on patient participation and participatory research. BMJ Publishing Group 2022-05-19 /pmc/articles/PMC9125715/ /pubmed/35613776 http://dx.doi.org/10.1136/bmjopen-2021-059006 Text en © Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) . |
spellingShingle | Ethics Jongsma, Karin Rolanda Milota, Megan M Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership |
title | Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership |
title_full | Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership |
title_fullStr | Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership |
title_full_unstemmed | Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership |
title_short | Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership |
title_sort | establishing a multistakeholder research agenda: lessons learned from a james lind alliance partnership |
topic | Ethics |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9125715/ https://www.ncbi.nlm.nih.gov/pubmed/35613776 http://dx.doi.org/10.1136/bmjopen-2021-059006 |
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