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Medical Communication during the Transition to Palliative Care in Pediatric Oncology in Hungary—The Parents’ Perspective

The transition to palliative care (PC) is a critical aspect of pediatric oncology, and it requires a high level of communication skills from doctors, which could be best judged by the parents of children who have died from cancer. Our aim was to explore the parents’ perspectives regarding the timing...

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Autores principales: Földesi, Enikő, Zörgő, Szilvia, Nyirő, Judit, Péter, György, Ottóffy, Gábor, Hauser, Peter, Hegedűs, Katalin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9139565/
https://www.ncbi.nlm.nih.gov/pubmed/35626828
http://dx.doi.org/10.3390/children9050651
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author Földesi, Enikő
Zörgő, Szilvia
Nyirő, Judit
Péter, György
Ottóffy, Gábor
Hauser, Peter
Hegedűs, Katalin
author_facet Földesi, Enikő
Zörgő, Szilvia
Nyirő, Judit
Péter, György
Ottóffy, Gábor
Hauser, Peter
Hegedűs, Katalin
author_sort Földesi, Enikő
collection PubMed
description The transition to palliative care (PC) is a critical aspect of pediatric oncology, and it requires a high level of communication skills from doctors, which could be best judged by the parents of children who have died from cancer. Our aim was to explore the parents’ perspectives regarding the timing of the consultation on the implementation of PC, as well as facets of verbal and nonverbal communication in Hungary. Semistructured interviews were conducted with parents who had lost a child to cancer within the past 1–5 years. Interview transcripts (n = 23) were scrutinized with interpretative phenomenological analysis. The parents frequently associated palliation with end-of-life care and they clearly delimited the transition to PC after curative treatments had been exhausted. The parents were ambivalent with regard to the use of the word “death” during this consultation, and they often did not receive information on what to expect (e.g., regarding symptoms) or on who to turn to for further information or support (e.g., concerning bereavement). Although significant progress could be observed in the organization of pediatric palliative care in Hungary, there is still no widely accepted communication method for the transition to sole PC. There is a need for a culturally sensitive approach to refining the recommendations on the word use and communication protocol in pediatric PC in Hungary.
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spelling pubmed-91395652022-05-28 Medical Communication during the Transition to Palliative Care in Pediatric Oncology in Hungary—The Parents’ Perspective Földesi, Enikő Zörgő, Szilvia Nyirő, Judit Péter, György Ottóffy, Gábor Hauser, Peter Hegedűs, Katalin Children (Basel) Article The transition to palliative care (PC) is a critical aspect of pediatric oncology, and it requires a high level of communication skills from doctors, which could be best judged by the parents of children who have died from cancer. Our aim was to explore the parents’ perspectives regarding the timing of the consultation on the implementation of PC, as well as facets of verbal and nonverbal communication in Hungary. Semistructured interviews were conducted with parents who had lost a child to cancer within the past 1–5 years. Interview transcripts (n = 23) were scrutinized with interpretative phenomenological analysis. The parents frequently associated palliation with end-of-life care and they clearly delimited the transition to PC after curative treatments had been exhausted. The parents were ambivalent with regard to the use of the word “death” during this consultation, and they often did not receive information on what to expect (e.g., regarding symptoms) or on who to turn to for further information or support (e.g., concerning bereavement). Although significant progress could be observed in the organization of pediatric palliative care in Hungary, there is still no widely accepted communication method for the transition to sole PC. There is a need for a culturally sensitive approach to refining the recommendations on the word use and communication protocol in pediatric PC in Hungary. MDPI 2022-05-02 /pmc/articles/PMC9139565/ /pubmed/35626828 http://dx.doi.org/10.3390/children9050651 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Földesi, Enikő
Zörgő, Szilvia
Nyirő, Judit
Péter, György
Ottóffy, Gábor
Hauser, Peter
Hegedűs, Katalin
Medical Communication during the Transition to Palliative Care in Pediatric Oncology in Hungary—The Parents’ Perspective
title Medical Communication during the Transition to Palliative Care in Pediatric Oncology in Hungary—The Parents’ Perspective
title_full Medical Communication during the Transition to Palliative Care in Pediatric Oncology in Hungary—The Parents’ Perspective
title_fullStr Medical Communication during the Transition to Palliative Care in Pediatric Oncology in Hungary—The Parents’ Perspective
title_full_unstemmed Medical Communication during the Transition to Palliative Care in Pediatric Oncology in Hungary—The Parents’ Perspective
title_short Medical Communication during the Transition to Palliative Care in Pediatric Oncology in Hungary—The Parents’ Perspective
title_sort medical communication during the transition to palliative care in pediatric oncology in hungary—the parents’ perspective
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9139565/
https://www.ncbi.nlm.nih.gov/pubmed/35626828
http://dx.doi.org/10.3390/children9050651
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