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Rare Diseases in the Educational Field: Knowledge and Perceptions of Spanish Teachers

Background: Education plays a fundamental role in everyone’s wellbeing. That means it is essential to provide quality inclusive activities to ensure equity and equality of opportunity in order to shape a cohesive, democratic, healthy society. Methods: In this study we focus on how inclusive educatio...

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Detalles Bibliográficos
Autores principales: García-Perales, Ramón, Palomares-Ruiz, Ascensión, Ordóñez-García, Lydia, García-Toledano, Eduardo
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9140519/
https://www.ncbi.nlm.nih.gov/pubmed/35627593
http://dx.doi.org/10.3390/ijerph19106057
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author García-Perales, Ramón
Palomares-Ruiz, Ascensión
Ordóñez-García, Lydia
García-Toledano, Eduardo
author_facet García-Perales, Ramón
Palomares-Ruiz, Ascensión
Ordóñez-García, Lydia
García-Toledano, Eduardo
author_sort García-Perales, Ramón
collection PubMed
description Background: Education plays a fundamental role in everyone’s wellbeing. That means it is essential to provide quality inclusive activities to ensure equity and equality of opportunity in order to shape a cohesive, democratic, healthy society. Methods: In this study we focus on how inclusive educational practice addresses students with rare diseases, looking at teachers’ knowledge and opinions in this regard. A questionnaire was administered to 574 teachers who taught in various stages of non-university education to determine their knowledge and opinions about different dimensions: conceptualization, legislation, intervention, and diagnosis. Results: The results suggested various ideas for improvement in pursuit of positive, real inclusion, such as the need to improve teachers’ knowledge and understanding of these students’ characteristics and potential, with widespread specific training being urgently needed. Conclusions: in summary, students’ rights to education without discrimination is a basic premise of an educational system, leading to the need for a complete educational response that allows each student to develop as a person.
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spelling pubmed-91405192022-05-28 Rare Diseases in the Educational Field: Knowledge and Perceptions of Spanish Teachers García-Perales, Ramón Palomares-Ruiz, Ascensión Ordóñez-García, Lydia García-Toledano, Eduardo Int J Environ Res Public Health Article Background: Education plays a fundamental role in everyone’s wellbeing. That means it is essential to provide quality inclusive activities to ensure equity and equality of opportunity in order to shape a cohesive, democratic, healthy society. Methods: In this study we focus on how inclusive educational practice addresses students with rare diseases, looking at teachers’ knowledge and opinions in this regard. A questionnaire was administered to 574 teachers who taught in various stages of non-university education to determine their knowledge and opinions about different dimensions: conceptualization, legislation, intervention, and diagnosis. Results: The results suggested various ideas for improvement in pursuit of positive, real inclusion, such as the need to improve teachers’ knowledge and understanding of these students’ characteristics and potential, with widespread specific training being urgently needed. Conclusions: in summary, students’ rights to education without discrimination is a basic premise of an educational system, leading to the need for a complete educational response that allows each student to develop as a person. MDPI 2022-05-16 /pmc/articles/PMC9140519/ /pubmed/35627593 http://dx.doi.org/10.3390/ijerph19106057 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
García-Perales, Ramón
Palomares-Ruiz, Ascensión
Ordóñez-García, Lydia
García-Toledano, Eduardo
Rare Diseases in the Educational Field: Knowledge and Perceptions of Spanish Teachers
title Rare Diseases in the Educational Field: Knowledge and Perceptions of Spanish Teachers
title_full Rare Diseases in the Educational Field: Knowledge and Perceptions of Spanish Teachers
title_fullStr Rare Diseases in the Educational Field: Knowledge and Perceptions of Spanish Teachers
title_full_unstemmed Rare Diseases in the Educational Field: Knowledge and Perceptions of Spanish Teachers
title_short Rare Diseases in the Educational Field: Knowledge and Perceptions of Spanish Teachers
title_sort rare diseases in the educational field: knowledge and perceptions of spanish teachers
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9140519/
https://www.ncbi.nlm.nih.gov/pubmed/35627593
http://dx.doi.org/10.3390/ijerph19106057
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