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Measuring Quality of Life in Parkinson’s Disease—A Call to Rethink Conceptualizations and Assessments

Parkinson’s disease (PD) is a chronic condition that considerably impacts the perception of quality of life (QoL) in both patients and their caregivers. Modern therapeutic approaches and social efforts strive at maintaining and promoting QoL. It has emerged as a fundamental parameter for clinical fo...

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Autores principales: Stührenberg, Maria, Berghäuser, Carolin S., van Munster, Marlena, Pedrosa Carrasco, Anna J., Pedrosa, David J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9148042/
https://www.ncbi.nlm.nih.gov/pubmed/35629226
http://dx.doi.org/10.3390/jpm12050804
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author Stührenberg, Maria
Berghäuser, Carolin S.
van Munster, Marlena
Pedrosa Carrasco, Anna J.
Pedrosa, David J.
author_facet Stührenberg, Maria
Berghäuser, Carolin S.
van Munster, Marlena
Pedrosa Carrasco, Anna J.
Pedrosa, David J.
author_sort Stührenberg, Maria
collection PubMed
description Parkinson’s disease (PD) is a chronic condition that considerably impacts the perception of quality of life (QoL) in both patients and their caregivers. Modern therapeutic approaches and social efforts strive at maintaining and promoting QoL. It has emerged as a fundamental parameter for clinical follow-up and poses one of the most important endpoints in scientific and economic evaluations of new care models. It is therefore of utmost importance to grasp concepts of QoL in a meaningful way. However, when taking a look at the origin of our modern understanding of QoL and existing methods for its measurement in PD patients, some aspects seem to lack sufficient appreciation. This article elaborates on how the perception of health and QoL have changed over time and discuss whether current understandings of both are reflected in the most commonly applied assessment methods for people with PD.
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spelling pubmed-91480422022-05-29 Measuring Quality of Life in Parkinson’s Disease—A Call to Rethink Conceptualizations and Assessments Stührenberg, Maria Berghäuser, Carolin S. van Munster, Marlena Pedrosa Carrasco, Anna J. Pedrosa, David J. J Pers Med Communication Parkinson’s disease (PD) is a chronic condition that considerably impacts the perception of quality of life (QoL) in both patients and their caregivers. Modern therapeutic approaches and social efforts strive at maintaining and promoting QoL. It has emerged as a fundamental parameter for clinical follow-up and poses one of the most important endpoints in scientific and economic evaluations of new care models. It is therefore of utmost importance to grasp concepts of QoL in a meaningful way. However, when taking a look at the origin of our modern understanding of QoL and existing methods for its measurement in PD patients, some aspects seem to lack sufficient appreciation. This article elaborates on how the perception of health and QoL have changed over time and discuss whether current understandings of both are reflected in the most commonly applied assessment methods for people with PD. MDPI 2022-05-16 /pmc/articles/PMC9148042/ /pubmed/35629226 http://dx.doi.org/10.3390/jpm12050804 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Communication
Stührenberg, Maria
Berghäuser, Carolin S.
van Munster, Marlena
Pedrosa Carrasco, Anna J.
Pedrosa, David J.
Measuring Quality of Life in Parkinson’s Disease—A Call to Rethink Conceptualizations and Assessments
title Measuring Quality of Life in Parkinson’s Disease—A Call to Rethink Conceptualizations and Assessments
title_full Measuring Quality of Life in Parkinson’s Disease—A Call to Rethink Conceptualizations and Assessments
title_fullStr Measuring Quality of Life in Parkinson’s Disease—A Call to Rethink Conceptualizations and Assessments
title_full_unstemmed Measuring Quality of Life in Parkinson’s Disease—A Call to Rethink Conceptualizations and Assessments
title_short Measuring Quality of Life in Parkinson’s Disease—A Call to Rethink Conceptualizations and Assessments
title_sort measuring quality of life in parkinson’s disease—a call to rethink conceptualizations and assessments
topic Communication
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9148042/
https://www.ncbi.nlm.nih.gov/pubmed/35629226
http://dx.doi.org/10.3390/jpm12050804
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