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Barriers and Facilitators to Healthcare Access in Adults with Intellectual and Developmental Disorders and Communication Difficulties: an Integrative Review

This integrative review explores the barriers to and facilitators of healthcare access in adults with intellectual and developmental disorders (IDD) and communication difficulties (CD) using Levesque et al.’s conceptual framework of access to health. IDDs are a group of disorders that occur early in...

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Detalles Bibliográficos
Autores principales: Shady, Kathryn, Phillips, Shannon, Newman, Susan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer US 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9148936/
https://www.ncbi.nlm.nih.gov/pubmed/35669718
http://dx.doi.org/10.1007/s40489-022-00324-8
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author Shady, Kathryn
Phillips, Shannon
Newman, Susan
author_facet Shady, Kathryn
Phillips, Shannon
Newman, Susan
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description This integrative review explores the barriers to and facilitators of healthcare access in adults with intellectual and developmental disorders (IDD) and communication difficulties (CD) using Levesque et al.’s conceptual framework of access to health. IDDs are a group of disorders that occur early in childhood and often involve language dysfunction. CDs are prevalent in adults with IDD. Several themes emerged as barriers to access for adults with IDDs and CDs including health literacy, understanding health information, and screening; fear and negative patient expectations; impaired autonomy; time; accommodation needs; insurance coverage and financial hardship; communication; coordination and continuity of care; and supporter presence and inclusion. Communication between providers, patients, and supporters is a significant barrier for adults with IDD and CD. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s40489-022-00324-8.
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spelling pubmed-91489362022-06-02 Barriers and Facilitators to Healthcare Access in Adults with Intellectual and Developmental Disorders and Communication Difficulties: an Integrative Review Shady, Kathryn Phillips, Shannon Newman, Susan Rev J Autism Dev Disord Review Paper This integrative review explores the barriers to and facilitators of healthcare access in adults with intellectual and developmental disorders (IDD) and communication difficulties (CD) using Levesque et al.’s conceptual framework of access to health. IDDs are a group of disorders that occur early in childhood and often involve language dysfunction. CDs are prevalent in adults with IDD. Several themes emerged as barriers to access for adults with IDDs and CDs including health literacy, understanding health information, and screening; fear and negative patient expectations; impaired autonomy; time; accommodation needs; insurance coverage and financial hardship; communication; coordination and continuity of care; and supporter presence and inclusion. Communication between providers, patients, and supporters is a significant barrier for adults with IDD and CD. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s40489-022-00324-8. Springer US 2022-05-30 /pmc/articles/PMC9148936/ /pubmed/35669718 http://dx.doi.org/10.1007/s40489-022-00324-8 Text en © The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature 2022 This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Review Paper
Shady, Kathryn
Phillips, Shannon
Newman, Susan
Barriers and Facilitators to Healthcare Access in Adults with Intellectual and Developmental Disorders and Communication Difficulties: an Integrative Review
title Barriers and Facilitators to Healthcare Access in Adults with Intellectual and Developmental Disorders and Communication Difficulties: an Integrative Review
title_full Barriers and Facilitators to Healthcare Access in Adults with Intellectual and Developmental Disorders and Communication Difficulties: an Integrative Review
title_fullStr Barriers and Facilitators to Healthcare Access in Adults with Intellectual and Developmental Disorders and Communication Difficulties: an Integrative Review
title_full_unstemmed Barriers and Facilitators to Healthcare Access in Adults with Intellectual and Developmental Disorders and Communication Difficulties: an Integrative Review
title_short Barriers and Facilitators to Healthcare Access in Adults with Intellectual and Developmental Disorders and Communication Difficulties: an Integrative Review
title_sort barriers and facilitators to healthcare access in adults with intellectual and developmental disorders and communication difficulties: an integrative review
topic Review Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9148936/
https://www.ncbi.nlm.nih.gov/pubmed/35669718
http://dx.doi.org/10.1007/s40489-022-00324-8
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