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Experiences of Families Caring for Children with Newborn Screening-Related Conditions: Implications for the Expansion of Genomics in Population-Based Neonatal Public Health Programs
With the expansion of newborn screening conditions globally and the increased use of genomic technologies for early detection, there is a need for ethically nuanced policies to guide the future integration of ever-more comprehensive genomics into population-based newborn screening programs. In the c...
Autores principales: | Bush, Lynn, Davidson, Hannah, Gelles, Shani, Lea, Dawn, Koehly, Laura M. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9149923/ https://www.ncbi.nlm.nih.gov/pubmed/35645289 http://dx.doi.org/10.3390/ijns8020035 |
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