Cargando…

Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology

It is increasingly recognised that collecting patient reported outcome measures (PROMs) data is an important part of healthcare and should be considered alongside traditional clinical assessments. As part of a more holistic view of healthcare provision, there has been an increased drive to implement...

Descripción completa

Detalles Bibliográficos
Autores principales: Alrubaiy, Laith, Hutchings, Hayley A, Hughes, Sarah E, Dobbs, Thomas
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Baishideng Publishing Group Inc 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9157705/
https://www.ncbi.nlm.nih.gov/pubmed/35721294
http://dx.doi.org/10.4254/wjh.v14.i5.896
_version_ 1784718693227298816
author Alrubaiy, Laith
Hutchings, Hayley A
Hughes, Sarah E
Dobbs, Thomas
author_facet Alrubaiy, Laith
Hutchings, Hayley A
Hughes, Sarah E
Dobbs, Thomas
author_sort Alrubaiy, Laith
collection PubMed
description It is increasingly recognised that collecting patient reported outcome measures (PROMs) data is an important part of healthcare and should be considered alongside traditional clinical assessments. As part of a more holistic view of healthcare provision, there has been an increased drive to implement PROM collection as part of routine clinical care in hepatology. This drive has resulted in an increase in the number of PROMs currently developed to be used in various liver conditions. However, the development and validation of a new PROM is time-consuming and costly. Therefore, before deciding to develop a new PROM, researchers should consider identifying existing PROMs to assess their appropriateness and, if necessary, make adaptations to existing PROMs to ensure their rigour when used with the target population. Little is written in the literature on how to identify and adapt the existing PROMs in hepatology. This article aims to provide a summary of the current literature and guidance regarding identifying and adapting existing PROMs in clinical practice.
format Online
Article
Text
id pubmed-9157705
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher Baishideng Publishing Group Inc
record_format MEDLINE/PubMed
spelling pubmed-91577052022-06-17 Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology Alrubaiy, Laith Hutchings, Hayley A Hughes, Sarah E Dobbs, Thomas World J Hepatol Minireviews It is increasingly recognised that collecting patient reported outcome measures (PROMs) data is an important part of healthcare and should be considered alongside traditional clinical assessments. As part of a more holistic view of healthcare provision, there has been an increased drive to implement PROM collection as part of routine clinical care in hepatology. This drive has resulted in an increase in the number of PROMs currently developed to be used in various liver conditions. However, the development and validation of a new PROM is time-consuming and costly. Therefore, before deciding to develop a new PROM, researchers should consider identifying existing PROMs to assess their appropriateness and, if necessary, make adaptations to existing PROMs to ensure their rigour when used with the target population. Little is written in the literature on how to identify and adapt the existing PROMs in hepatology. This article aims to provide a summary of the current literature and guidance regarding identifying and adapting existing PROMs in clinical practice. Baishideng Publishing Group Inc 2022-05-27 2022-05-27 /pmc/articles/PMC9157705/ /pubmed/35721294 http://dx.doi.org/10.4254/wjh.v14.i5.896 Text en ©The Author(s) 2022. Published by Baishideng Publishing Group Inc. All rights reserved. https://creativecommons.org/licenses/by-nc/4.0/This article is an open-access article that was selected by an in-house editor and fully peer-reviewed by external reviewers. It is distributed in accordance with the Creative Commons Attribution NonCommercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial.
spellingShingle Minireviews
Alrubaiy, Laith
Hutchings, Hayley A
Hughes, Sarah E
Dobbs, Thomas
Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
title Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
title_full Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
title_fullStr Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
title_full_unstemmed Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
title_short Saving time and effort: Best practice for adapting existing patient-reported outcome measures in hepatology
title_sort saving time and effort: best practice for adapting existing patient-reported outcome measures in hepatology
topic Minireviews
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9157705/
https://www.ncbi.nlm.nih.gov/pubmed/35721294
http://dx.doi.org/10.4254/wjh.v14.i5.896
work_keys_str_mv AT alrubaiylaith savingtimeandeffortbestpracticeforadaptingexistingpatientreportedoutcomemeasuresinhepatology
AT hutchingshayleya savingtimeandeffortbestpracticeforadaptingexistingpatientreportedoutcomemeasuresinhepatology
AT hughessarahe savingtimeandeffortbestpracticeforadaptingexistingpatientreportedoutcomemeasuresinhepatology
AT dobbsthomas savingtimeandeffortbestpracticeforadaptingexistingpatientreportedoutcomemeasuresinhepatology