In the family: access to, and communication of, familial information in clinical practice

How an individual’s genetic information is governed by confidentiality, and how the interests of others—such as close relatives—in knowing such information might be respected, has been the topic of much debate ever since genetic testing has become more prevalent. In this paper, two authors who often...

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Detalles Bibliográficos
Autores principales: Lucassen, Anneke, Clarke, Angus
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2021
Materias:
Original Investigation
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9160086/
https://www.ncbi.nlm.nih.gov/pubmed/34878592
http://dx.doi.org/10.1007/s00439-021-02401-0
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author Lucassen, Anneke
Clarke, Angus
author_facet Lucassen, Anneke
Clarke, Angus
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description How an individual’s genetic information is governed by confidentiality, and how the interests of others—such as close relatives—in knowing such information might be respected, has been the topic of much debate ever since genetic testing has become more prevalent. In this paper, two authors who often appear to have different views on familial disclosure, discuss where they agree on this topic.
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spelling pubmed-91600862022-06-03 In the family: access to, and communication of, familial information in clinical practice Lucassen, Anneke Clarke, Angus Hum Genet Original Investigation How an individual’s genetic information is governed by confidentiality, and how the interests of others—such as close relatives—in knowing such information might be respected, has been the topic of much debate ever since genetic testing has become more prevalent. In this paper, two authors who often appear to have different views on familial disclosure, discuss where they agree on this topic. Springer Berlin Heidelberg 2021-12-08 2022 /pmc/articles/PMC9160086/ /pubmed/34878592 http://dx.doi.org/10.1007/s00439-021-02401-0 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) .
spellingShingle Original Investigation
Lucassen, Anneke
Clarke, Angus
In the family: access to, and communication of, familial information in clinical practice
title In the family: access to, and communication of, familial information in clinical practice
title_full In the family: access to, and communication of, familial information in clinical practice
title_fullStr In the family: access to, and communication of, familial information in clinical practice
title_full_unstemmed In the family: access to, and communication of, familial information in clinical practice
title_short In the family: access to, and communication of, familial information in clinical practice
title_sort in the family: access to, and communication of, familial information in clinical practice
topic Original Investigation
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9160086/
https://www.ncbi.nlm.nih.gov/pubmed/34878592
http://dx.doi.org/10.1007/s00439-021-02401-0
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