Experiences of the COVID-19 pandemic: A survey of patients on home parenteral nutrition

Patients on home parenteral nutrition (HPN) have had to endure sweeping changes to their personal lives and medical care during the COVID-19 pandemic. We evaluated the patients' perspectives of these changes at our Intestinal Failure/Rehabilitation centre in order to initiate a debate on improv...

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Detalles Bibliográficos
Autores principales: McCulloch, Adam, Jones, Ilva, Fletcher, Jane, Malhi, Hardip, Cooper, Sheldon C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: European Society for Clinical Nutrition and Metabolism. Published by Elsevier Ltd. 2022
Materias:
Opinion Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9161689/
https://www.ncbi.nlm.nih.gov/pubmed/35871946
http://dx.doi.org/10.1016/j.clnesp.2022.05.021
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author McCulloch, Adam
Jones, Ilva
Fletcher, Jane
Malhi, Hardip
Cooper, Sheldon C.
author_facet McCulloch, Adam
Jones, Ilva
Fletcher, Jane
Malhi, Hardip
Cooper, Sheldon C.
author_sort McCulloch, Adam
collection PubMed
description Patients on home parenteral nutrition (HPN) have had to endure sweeping changes to their personal lives and medical care during the COVID-19 pandemic. We evaluated the patients' perspectives of these changes at our Intestinal Failure/Rehabilitation centre in order to initiate a debate on improving HPN care. The findings point to high levels of anxiety and depression amongst the 35 patients surveyed with many reporting frustration at conflicting information from different sources. Telephone consultations were well received and most were keen for these to continue. In light of these results, we outline recommendations to enhance our patients’ experiences in the coming phases of the pandemic.
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spelling pubmed-91616892022-06-02 Experiences of the COVID-19 pandemic: A survey of patients on home parenteral nutrition McCulloch, Adam Jones, Ilva Fletcher, Jane Malhi, Hardip Cooper, Sheldon C. Clin Nutr ESPEN Opinion Paper Patients on home parenteral nutrition (HPN) have had to endure sweeping changes to their personal lives and medical care during the COVID-19 pandemic. We evaluated the patients' perspectives of these changes at our Intestinal Failure/Rehabilitation centre in order to initiate a debate on improving HPN care. The findings point to high levels of anxiety and depression amongst the 35 patients surveyed with many reporting frustration at conflicting information from different sources. Telephone consultations were well received and most were keen for these to continue. In light of these results, we outline recommendations to enhance our patients’ experiences in the coming phases of the pandemic. European Society for Clinical Nutrition and Metabolism. Published by Elsevier Ltd. 2022-08 2022-06-02 /pmc/articles/PMC9161689/ /pubmed/35871946 http://dx.doi.org/10.1016/j.clnesp.2022.05.021 Text en © 2022 European Society for Clinical Nutrition and Metabolism. Published by Elsevier Ltd. All rights reserved. Since January 2020 Elsevier has created a COVID-19 resource centre with free information in English and Mandarin on the novel coronavirus COVID-19. The COVID-19 resource centre is hosted on Elsevier Connect, the company's public news and information website. Elsevier hereby grants permission to make all its COVID-19-related research that is available on the COVID-19 resource centre - including this research content - immediately available in PubMed Central and other publicly funded repositories, such as the WHO COVID database with rights for unrestricted research re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for free by Elsevier for as long as the COVID-19 resource centre remains active.
spellingShingle Opinion Paper
McCulloch, Adam
Jones, Ilva
Fletcher, Jane
Malhi, Hardip
Cooper, Sheldon C.
Experiences of the COVID-19 pandemic: A survey of patients on home parenteral nutrition
title Experiences of the COVID-19 pandemic: A survey of patients on home parenteral nutrition
title_full Experiences of the COVID-19 pandemic: A survey of patients on home parenteral nutrition
title_fullStr Experiences of the COVID-19 pandemic: A survey of patients on home parenteral nutrition
title_full_unstemmed Experiences of the COVID-19 pandemic: A survey of patients on home parenteral nutrition
title_short Experiences of the COVID-19 pandemic: A survey of patients on home parenteral nutrition
title_sort experiences of the covid-19 pandemic: a survey of patients on home parenteral nutrition
topic Opinion Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9161689/
https://www.ncbi.nlm.nih.gov/pubmed/35871946
http://dx.doi.org/10.1016/j.clnesp.2022.05.021
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