Cargando…

SWK-06. Structured transition from pediatric neuro-oncology to adult survivorship follow-up care - Can we close the gap?

PURPOSE: Advances in treatment have increased survival rates and quality of life of pediatric CNS tumor patients leading to a growing number of long-term survivors. However, there is sufficient clinical and scientific evidence for the need of a highly specialized lifelong follow-up care due to multi...

Descripción completa

Detalles Bibliográficos
Autores principales:	Krottendorfer, Kerstin, Baumgartner, Alicia-Christina, Boehm, Alexandra, Ziomek, Sabina, Peyrl, Andreas, Gsell, Hannah, Schneider, Carina, Rosenmayr, Verena, Gojo, Johannes Salomon, Azizi, Amedeo, Rinner, Sarah, Burger, Sabine, Huemer, Marlene, Pucher, Anna, Leiss, Ulrike
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Oxford University Press 2022
Materias:	Social Work/Patient Support/Palliative Care
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9164870/ http://dx.doi.org/10.1093/neuonc/noac079.678

Ejemplares similares

SWK-05. Clinical social work in pediatric neuro-oncology – A research project on the social dimension using social diagnostics
por: Krottendorfer, Kerstin, et al.
Publicado: (2022)

SWK-10. Survivorship: Education, Clinical Guidelines, and Transition to Adult Care
por: Hemenway, Molly, et al.
Publicado: (2022)

SWK-05. EDUCATIONAL APPROACH TO GRIEF MANAGEMENT
por: DeRosa, Veronica, et al.
Publicado: (2020)

SWK-08. Implementing awareness practice in Neuro-Oncology
por: DeRosa, Veronica
Publicado: (2022)

SWK-10. TELEHEALTH IN OUTPATIENT PEDIATRIC NEURO-ONCOLOGY CARE
por: Raber, Shannon, et al.
Publicado: (2020)

SWK-03. Neuroimaging in CNS tumours: To GA , or not to GA, that is the question.
por: Ryles, Jade, et al.
Publicado: (2022)

SWK-06. ANSWERING 900 VOICES: A NATIONAL NONPROFIT ORGANIZATION RESPONDS TO A NATIONWIDE COMMUNITY HEALTH NEEDS ASSESSMENT THAT ELUCIDATED KEY CHALLENGES FACED BY PEDIATRIC BRAIN TUMOR FAMILIES
por: Riley, Kathy
Publicado: (2020)

SWK-02. WEAVING COMFORT AND SUPPORT FOR CHILDREN WITH BRAIN TUMORS AND THEIR FAMILIES IN AN OUTPATIENT CLINIC
por: Hawks, Ria, et al.
Publicado: (2020)

SWK-04. Investigation on Anxiety and Depression of Parents of Children with Central Nervous System Tumors
por: Yang, Huajun, et al.
Publicado: (2022)

SWK-04. A MOBILE AUGMENTED REALITY APP FOR SURGICAL PREPARATION FOR CHILDREN WITH BRAIN TUMORS
por: Granville, Sharon, et al.
Publicado: (2020)

SWK-12. PEDIATRIC NEURO-ONCOLOGY PARENT PERSPECTIVE ON ASPECTS OF SOCIAL AND EMOTIONAL SUPPORT FOR ONLINE APPLICATION
por: Koch, Kendra, et al.
Publicado: (2020)

SWK-08. DELAYED DIAGNOSIS OF CENTRAL NERVOUS SYSTEM (CNS) TUMORS IN CHILDREN: PERSPECTIVE FROM THE FRONTLINE
por: Jogendran, Manisha, et al.
Publicado: (2020)

SWK-07. Family mental health screening early after a diagnosis of pediatric brain tumor
por: Rodemann, Ashley, et al.
Publicado: (2022)

SWK-11. ASSESSMENT OF THE INDIRECT COSTS ASSOCIATED WITH PROTON THERAPY TREATMENT FOR ALBERTA PATIENTS REFERRED OUT OF COUNTRY
por: Black, Karina, et al.
Publicado: (2020)

SWK-03. CAREGIVER EXPERIENCES FOR PEDIATRIC BRAIN TUMOR PATIENTS AND THEIR FAMILIES AT A DEDICATED MEDICAL SPECIALTY CAMP
por: Brownfield, Ryan, et al.
Publicado: (2020)

SWK-07. A MULTINATIONAL SURVEY OF PAEDIATRIC NEURO-ONCOLOGY SERVICES: A EUROPEAN RESEARCH NETWORK (ERN) PAEDCAN PROJECT
por: Cooper, Katherine, et al.
Publicado: (2020)

SWK-02. Palliative sedation in pediatric patients suffering from brain tumors: choosing the best drugs to improve end of life
por: Podda, Marta, et al.
Publicado: (2022)

SWK-01. Partnership between caregivers, patients and healthcare professionals: promoting collaboration in a complex care pathway in pediatric neuro-oncology
por: Granero, Anita, et al.
Publicado: (2022)

SWK-09. SELF-CARE OUTCOMES AND INTERVENTIONS FOR CHILDREN WHO HAVE HAD A BRAIN TUMOUR: EVIDENCE AND HYPOTHESES. WHAT SHOULD SELF-CARE INTERVENTIONS FOR CHILDREN WITH PAST OR PRESENT BRAIN TUMOUR BE?
por: Rowen, Elizabeth, et al.
Publicado: (2020)

QOL-35. School reentry of children and adolescents with a brain tumor: can we improve family-school-hospital cooperation? An analysis of supportive and inhibiting factors as a result of a pilot project
por: Leiss, Ulrike, et al.
Publicado: (2022)

FP06.04 Psychological Distress in Outpatients with Lymphoma, Lung and Breast Cancer during COVID-19 pandemic
por: Catino, A., et al.
Publicado: (2021)

IMPACT OF COVID-19 PANDEMIC ON DELAY OF CHILDHOOD CANCER DIAGNOSIS AND THE OUTCOMES IN A PEDIATRIC HEMATOLOGY/ONCOLOGY DEPARTMENT
por: CAKMAKCI, Selma, et al.
Publicado: (2022)

Bridging the gap: A quality improvement project to implement psychosocial care standards into clinical practice in pediatric oncology
por: Weiler-Wichtl, Liesa J., et al.
Publicado: (2023)

NURS-06. NURSING PROFESSIONALS AND THEIR AID IN RESEARCH BIOBANKING
por: Hancock, Lauren, et al.
Publicado: (2020)

DDEL-05. Intraventricular therapy with topotecan is feasible and safe: Experience in 50 pediatric patients with various malignant brain tumors
por: Peyrl, Andreas, et al.
Publicado: (2022)

Sociocultural variables have a major impact on participation in patients treated for paediatric posterior fossa tumours
por: Hoffmann‐Lamplmair, Doris, et al.
Publicado: (2022)

Prospective Evaluation of Kidney Function in Long-Term Survivors of Pediatric CNS Tumors
por: Stepien, Natalia, et al.
Publicado: (2022)

EP10.01-009 The Impact of the COVID-19 Pandemic on Palliative Care for Cancer: A Preliminary Cross-Country Survey of Clinical Oncologists
por: Wang, Y., et al.
Publicado: (2022)

ETMR-10. EARLY FOCAL RADIOTHERAPY AND TEMOZOLOMIDE FOLLOWING COMPLETE RESECTION APPEAR SUPERIOR TO INTENSIVE CHEMOTHERAPY AND DELAYED RADIOTHERAPY IN CHILDREN WITH EMBRYONAL TUMORS WITH MULTILAYERED ROSETTES (ETMR)
por: Mayr, Lisa, et al.
Publicado: (2020)

Placement of EVD in pediatric posterior fossa tumors: safe and efficient or old-fashioned? The Vienna experience
por: Hedrich, Cora, et al.
Publicado: (2023)

Palliative care for the management of chronic illness: a systematic review study protocol
por: Effiong, Andem, et al.
Publicado: (2012)

Understanding integrated care pathways in palliative care using realist evaluation: a mixed methods study protocol
por: Dalkin, Sonia Michelle, et al.
Publicado: (2012)

Registration in a quality register: a method to improve end-of-life care—a cross-sectional study
por: Martinsson, Lisa, et al.
Publicado: (2012)

Future Care Planning for patients approaching end-of-life with advanced heart disease: an interview study with patients, carers and healthcare professionals exploring the content, rationale and design of a randomised clinical trial
por: Denvir, Martin A, et al.
Publicado: (2014)

A protocol for an exploratory phase I mixed-methods study of enhanced integrated care for care home residents with advanced dementia: the Compassion Intervention
por: Elliott, Margaret, et al.
Publicado: (2014)

The role and significance of nurses in managing transitions to palliative care: a qualitative study
por: Kirby, Emma, et al.
Publicado: (2014)

The assessment and impact of sarcopenia in lung cancer: a systematic literature review
por: Collins, Jemima, et al.
Publicado: (2014)

Social support for South Asian Muslim parents with life-limiting illness living in Scotland: a multiperspective qualitative study
por: Gaveras, Eleni Margareta, et al.
Publicado: (2014)

CoMPASs: IOn programme (Care Of Memory Problems in Advanced Stages of dementia: Improving Our Knowledge): protocol for a mixed methods study
por: Jones, Louise, et al.
Publicado: (2012)

Can variability in the effect of opioids on refractory breathlessness be explained by genetic factors?
por: Currow, David C, et al.
Publicado: (2015)

Cannot write session to /tmp/vufind_sessions/sess_2qrr2s1tgn0d2gl5en38k9udj6