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RARE-13. Clinical management and functional and survival outcomes in pediatric craniopharyngioma, a patient and family perspective

Craniopharyngiomas are rare, histologically benign, sellar/parasellar tumors with significant tumor and therapy related morbidity and impairment in quality of life (QOL). We report survey results from patients/families affected by childhood-onset craniopharyngioma to identify opportunities for impro...

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Detalles Bibliográficos
Autores principales:	Marshall, Emily, Cheng, Sylvia, Crowley, Julia, McCormack, Shana, Rood, Brian, Hankinson, Todd, DeCuypere, Michael, Lam, Sandy, Goldman, Stewart, Boekhoff, Svenja, Muller, Hermann L, Velasco, Ryan, Storm, Phillip B, Resnick, Adam, Prados, Michael, Mueller, Sabine, Kline, Cassie, Malbari, Fatema
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Oxford University Press 2022
Materias:	Craniopharyngioma and Rare Tumors
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9165153/ http://dx.doi.org/10.1093/neuonc/noac079.038

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