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Facilitators and barriers in using comics to support family caregivers of patients receiving palliative care at home: A qualitative study
BACKGROUND: Family caregiving at home is highly important for people receiving palliative treatment, but also a complex experience, subject to implicit social expectations. This study empirically explored the claim that comics benefit palliative care practice, through evaluating a graphic novel’s va...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9174613/ https://www.ncbi.nlm.nih.gov/pubmed/35502800 http://dx.doi.org/10.1177/02692163221093513 |
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author | Haan, Maaike M van Gurp, Jelle LP Knippenberg, Marjan Olthuis, Gert |
author_facet | Haan, Maaike M van Gurp, Jelle LP Knippenberg, Marjan Olthuis, Gert |
author_sort | Haan, Maaike M |
collection | PubMed |
description | BACKGROUND: Family caregiving at home is highly important for people receiving palliative treatment, but also a complex experience, subject to implicit social expectations. This study empirically explored the claim that comics benefit palliative care practice, through evaluating a graphic novel’s value as an aid in supportive conversations with family caregivers. AIM: To identify facilitators and barriers in using Naasten (Loved ones), a Dutch research-based graphic novel about family caregivers providing care at the end-of-life. DESIGN: Qualitative study, following thematic content analysis. SETTING/PARTICIPANTS: Three focus groups with family caregiver consultants, palliative care volunteers, and healthcare professionals (total N = 23) who supported family caregivers; and individual telephone interviews with family caregivers to whom the book was presented (N = 4). RESULTS: Barriers and facilitators related to: (1) the family caregiver, (2) impact on the family caregiver, (3) impact on the conversation between the person who provides support and the family caregiver, (4) their relationship, and (5) the person who provides support. Naasten was reported as recognizable and supportive, and powerful in raising emotions, awareness and conversation. Barriers concerned the book’s impact due to its style and guidance of a conversation, and doubts about its surplus-value. CONCLUSIONS: Emotionally impactful comics may support bereaved family caregivers, but should be introduced with care among current family caregivers, for example, ensuring a right fit, introduction, and follow-up—while taking into account a caregiver’s individual situation, needs, abilities, and affinity with the medium. Comics are preferably used in educational settings, contributing to professional awareness and tailored support of family caregivers. |
format | Online Article Text |
id | pubmed-9174613 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-91746132022-06-09 Facilitators and barriers in using comics to support family caregivers of patients receiving palliative care at home: A qualitative study Haan, Maaike M van Gurp, Jelle LP Knippenberg, Marjan Olthuis, Gert Palliat Med Original Articles BACKGROUND: Family caregiving at home is highly important for people receiving palliative treatment, but also a complex experience, subject to implicit social expectations. This study empirically explored the claim that comics benefit palliative care practice, through evaluating a graphic novel’s value as an aid in supportive conversations with family caregivers. AIM: To identify facilitators and barriers in using Naasten (Loved ones), a Dutch research-based graphic novel about family caregivers providing care at the end-of-life. DESIGN: Qualitative study, following thematic content analysis. SETTING/PARTICIPANTS: Three focus groups with family caregiver consultants, palliative care volunteers, and healthcare professionals (total N = 23) who supported family caregivers; and individual telephone interviews with family caregivers to whom the book was presented (N = 4). RESULTS: Barriers and facilitators related to: (1) the family caregiver, (2) impact on the family caregiver, (3) impact on the conversation between the person who provides support and the family caregiver, (4) their relationship, and (5) the person who provides support. Naasten was reported as recognizable and supportive, and powerful in raising emotions, awareness and conversation. Barriers concerned the book’s impact due to its style and guidance of a conversation, and doubts about its surplus-value. CONCLUSIONS: Emotionally impactful comics may support bereaved family caregivers, but should be introduced with care among current family caregivers, for example, ensuring a right fit, introduction, and follow-up—while taking into account a caregiver’s individual situation, needs, abilities, and affinity with the medium. Comics are preferably used in educational settings, contributing to professional awareness and tailored support of family caregivers. SAGE Publications 2022-05-03 2022-06 /pmc/articles/PMC9174613/ /pubmed/35502800 http://dx.doi.org/10.1177/02692163221093513 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage) |
spellingShingle | Original Articles Haan, Maaike M van Gurp, Jelle LP Knippenberg, Marjan Olthuis, Gert Facilitators and barriers in using comics to support family caregivers of patients receiving palliative care at home: A qualitative study |
title | Facilitators and barriers in using comics to support family
caregivers of patients receiving palliative care at home: A qualitative
study |
title_full | Facilitators and barriers in using comics to support family
caregivers of patients receiving palliative care at home: A qualitative
study |
title_fullStr | Facilitators and barriers in using comics to support family
caregivers of patients receiving palliative care at home: A qualitative
study |
title_full_unstemmed | Facilitators and barriers in using comics to support family
caregivers of patients receiving palliative care at home: A qualitative
study |
title_short | Facilitators and barriers in using comics to support family
caregivers of patients receiving palliative care at home: A qualitative
study |
title_sort | facilitators and barriers in using comics to support family
caregivers of patients receiving palliative care at home: a qualitative
study |
topic | Original Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9174613/ https://www.ncbi.nlm.nih.gov/pubmed/35502800 http://dx.doi.org/10.1177/02692163221093513 |
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