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Real-World Data on Access to Standards of Care for People With Spinal Muscular Atrophy in the UK
Spinal Muscular Atrophy (SMA) is characterized by muscle atrophy and weakness and has an incidence of 1:11. 000 live births which projects an estimated population in the UK of 650–1,300 affected patients. Standards of Care (SoC) were updated in 2017 and they have been widely adopted as a reference f...
Autores principales: | Muni-Lofra, Robert, Murphy, Lindsay B., Adcock, Kate, Farrugia, Maria E., Irwin, Joseph, Lilleker, James B., McConville, John, Merrison, Andria, Parton, Matt, Ryburn, Liz, Scoto, Mariacristina, Marini-Bettolo, Chiara, Mayhew, Anna |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9190261/ https://www.ncbi.nlm.nih.gov/pubmed/35707038 http://dx.doi.org/10.3389/fneur.2022.866243 |
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