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The Hemophilia Gene Therapy Patient Journey: Questions and Answers for Shared Decision-Making

PURPOSE: The anticipated emergence of hemophilia gene therapy will present people with hemophilia (PWH) and treating clinicians with increasingly complex treatment options. It will be critical that PWH and their families be empowered to participate fully in decision-making through transparent commun...

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Detalles Bibliográficos
Autores principales:	Wang, Michael, Negrier, Claude, Driessler, Frank, Goodman, Clifford, Skinner, Mark W
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Dove 2022
Materias:	Perspectives
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9191577/ https://www.ncbi.nlm.nih.gov/pubmed/35707346 http://dx.doi.org/10.2147/PPA.S355627

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