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Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa

The benefits of HIV status disclosure to children is widely cited. However, few studies have reported how children respond to the process in a longitudinal fashion. This paper describes children's responses, as documented by healthcare providers (HCPs), during a longitudinal disclosure study co...

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Autores principales: Ramsammy, Candice W., Galvin, Lisa, Joyce, Celeste, Leshabane, Given, Buckley, Janice, Otwombe, Kennedy, Liberty, Afaaf, Violari, Avy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9192950/
https://www.ncbi.nlm.nih.gov/pubmed/35712628
http://dx.doi.org/10.3389/fped.2022.857336
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author Ramsammy, Candice W.
Galvin, Lisa
Joyce, Celeste
Leshabane, Given
Buckley, Janice
Otwombe, Kennedy
Liberty, Afaaf
Violari, Avy
author_facet Ramsammy, Candice W.
Galvin, Lisa
Joyce, Celeste
Leshabane, Given
Buckley, Janice
Otwombe, Kennedy
Liberty, Afaaf
Violari, Avy
author_sort Ramsammy, Candice W.
collection PubMed
description The benefits of HIV status disclosure to children is widely cited. However, few studies have reported how children respond to the process in a longitudinal fashion. This paper describes children's responses, as documented by healthcare providers (HCPs), during a longitudinal disclosure study conducted at Chris Hani Baragwanath Academic Hospital in Soweto, South Africa. Two HCPs facilitating disclosure recorded observations of 30 participating children (60% female), aged 7-13 years. Participants attended an average of six disclosure counseling sessions over 78 weeks. Observations documented by HCPs included the child's behavior and expressed emotions during the disclosure counseling sessions. The data was analyzed using content analysis. Mixed responses were observed in children who received full disclosure (27/30), with more children responding with strong negative emotions (16/27). However, 10 of those responded well to reassurance, and emotionally improved over subsequent sessions. Improvements were also observed in the communication and relationship between caregivers and children (17/30). Although most children understood the disclosure content (17/30), many were avoidant of the topic of HIV (16/30). With the understanding of the complex range of emotions elicited by HIV disclosure, we can better prepare HCPs on what to anticipate and train caregivers to further manage negative responses post-disclosure. This in turn may lead to more positive experiences of disclosure and the child's healthy acceptance of their HIV status.
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spelling pubmed-91929502022-06-15 Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa Ramsammy, Candice W. Galvin, Lisa Joyce, Celeste Leshabane, Given Buckley, Janice Otwombe, Kennedy Liberty, Afaaf Violari, Avy Front Pediatr Pediatrics The benefits of HIV status disclosure to children is widely cited. However, few studies have reported how children respond to the process in a longitudinal fashion. This paper describes children's responses, as documented by healthcare providers (HCPs), during a longitudinal disclosure study conducted at Chris Hani Baragwanath Academic Hospital in Soweto, South Africa. Two HCPs facilitating disclosure recorded observations of 30 participating children (60% female), aged 7-13 years. Participants attended an average of six disclosure counseling sessions over 78 weeks. Observations documented by HCPs included the child's behavior and expressed emotions during the disclosure counseling sessions. The data was analyzed using content analysis. Mixed responses were observed in children who received full disclosure (27/30), with more children responding with strong negative emotions (16/27). However, 10 of those responded well to reassurance, and emotionally improved over subsequent sessions. Improvements were also observed in the communication and relationship between caregivers and children (17/30). Although most children understood the disclosure content (17/30), many were avoidant of the topic of HIV (16/30). With the understanding of the complex range of emotions elicited by HIV disclosure, we can better prepare HCPs on what to anticipate and train caregivers to further manage negative responses post-disclosure. This in turn may lead to more positive experiences of disclosure and the child's healthy acceptance of their HIV status. Frontiers Media S.A. 2022-05-31 /pmc/articles/PMC9192950/ /pubmed/35712628 http://dx.doi.org/10.3389/fped.2022.857336 Text en Copyright © 2022 Ramsammy, Galvin, Joyce, Leshabane, Buckley, Otwombe, Liberty and Violari. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Pediatrics
Ramsammy, Candice W.
Galvin, Lisa
Joyce, Celeste
Leshabane, Given
Buckley, Janice
Otwombe, Kennedy
Liberty, Afaaf
Violari, Avy
Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa
title Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa
title_full Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa
title_fullStr Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa
title_full_unstemmed Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa
title_short Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa
title_sort children's positive and negative emotional responses to an hiv disclosure study in south africa
topic Pediatrics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9192950/
https://www.ncbi.nlm.nih.gov/pubmed/35712628
http://dx.doi.org/10.3389/fped.2022.857336
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