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Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa
The benefits of HIV status disclosure to children is widely cited. However, few studies have reported how children respond to the process in a longitudinal fashion. This paper describes children's responses, as documented by healthcare providers (HCPs), during a longitudinal disclosure study co...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Frontiers Media S.A.
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9192950/ https://www.ncbi.nlm.nih.gov/pubmed/35712628 http://dx.doi.org/10.3389/fped.2022.857336 |
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author | Ramsammy, Candice W. Galvin, Lisa Joyce, Celeste Leshabane, Given Buckley, Janice Otwombe, Kennedy Liberty, Afaaf Violari, Avy |
author_facet | Ramsammy, Candice W. Galvin, Lisa Joyce, Celeste Leshabane, Given Buckley, Janice Otwombe, Kennedy Liberty, Afaaf Violari, Avy |
author_sort | Ramsammy, Candice W. |
collection | PubMed |
description | The benefits of HIV status disclosure to children is widely cited. However, few studies have reported how children respond to the process in a longitudinal fashion. This paper describes children's responses, as documented by healthcare providers (HCPs), during a longitudinal disclosure study conducted at Chris Hani Baragwanath Academic Hospital in Soweto, South Africa. Two HCPs facilitating disclosure recorded observations of 30 participating children (60% female), aged 7-13 years. Participants attended an average of six disclosure counseling sessions over 78 weeks. Observations documented by HCPs included the child's behavior and expressed emotions during the disclosure counseling sessions. The data was analyzed using content analysis. Mixed responses were observed in children who received full disclosure (27/30), with more children responding with strong negative emotions (16/27). However, 10 of those responded well to reassurance, and emotionally improved over subsequent sessions. Improvements were also observed in the communication and relationship between caregivers and children (17/30). Although most children understood the disclosure content (17/30), many were avoidant of the topic of HIV (16/30). With the understanding of the complex range of emotions elicited by HIV disclosure, we can better prepare HCPs on what to anticipate and train caregivers to further manage negative responses post-disclosure. This in turn may lead to more positive experiences of disclosure and the child's healthy acceptance of their HIV status. |
format | Online Article Text |
id | pubmed-9192950 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Frontiers Media S.A. |
record_format | MEDLINE/PubMed |
spelling | pubmed-91929502022-06-15 Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa Ramsammy, Candice W. Galvin, Lisa Joyce, Celeste Leshabane, Given Buckley, Janice Otwombe, Kennedy Liberty, Afaaf Violari, Avy Front Pediatr Pediatrics The benefits of HIV status disclosure to children is widely cited. However, few studies have reported how children respond to the process in a longitudinal fashion. This paper describes children's responses, as documented by healthcare providers (HCPs), during a longitudinal disclosure study conducted at Chris Hani Baragwanath Academic Hospital in Soweto, South Africa. Two HCPs facilitating disclosure recorded observations of 30 participating children (60% female), aged 7-13 years. Participants attended an average of six disclosure counseling sessions over 78 weeks. Observations documented by HCPs included the child's behavior and expressed emotions during the disclosure counseling sessions. The data was analyzed using content analysis. Mixed responses were observed in children who received full disclosure (27/30), with more children responding with strong negative emotions (16/27). However, 10 of those responded well to reassurance, and emotionally improved over subsequent sessions. Improvements were also observed in the communication and relationship between caregivers and children (17/30). Although most children understood the disclosure content (17/30), many were avoidant of the topic of HIV (16/30). With the understanding of the complex range of emotions elicited by HIV disclosure, we can better prepare HCPs on what to anticipate and train caregivers to further manage negative responses post-disclosure. This in turn may lead to more positive experiences of disclosure and the child's healthy acceptance of their HIV status. Frontiers Media S.A. 2022-05-31 /pmc/articles/PMC9192950/ /pubmed/35712628 http://dx.doi.org/10.3389/fped.2022.857336 Text en Copyright © 2022 Ramsammy, Galvin, Joyce, Leshabane, Buckley, Otwombe, Liberty and Violari. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
spellingShingle | Pediatrics Ramsammy, Candice W. Galvin, Lisa Joyce, Celeste Leshabane, Given Buckley, Janice Otwombe, Kennedy Liberty, Afaaf Violari, Avy Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa |
title | Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa |
title_full | Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa |
title_fullStr | Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa |
title_full_unstemmed | Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa |
title_short | Children's Positive and Negative Emotional Responses to an HIV Disclosure Study in South Africa |
title_sort | children's positive and negative emotional responses to an hiv disclosure study in south africa |
topic | Pediatrics |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9192950/ https://www.ncbi.nlm.nih.gov/pubmed/35712628 http://dx.doi.org/10.3389/fped.2022.857336 |
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