Care burden and associated factors in caregivers of children with cancer

BACKGROUND: Evidence suggests that many parents who care for their children with cancer are affected by the care burden due to the chronic nature of the disease. The aim of this study was to determine the burden of care level and its related factors in the caregivers of children with cancer. METHOD:...

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Autores principales: Chaghazardi, Mahnaz, Janatolmakan, Maryam, Rezaeian, Shahab, Khatony, Alireza
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9195224/
https://www.ncbi.nlm.nih.gov/pubmed/35698160
http://dx.doi.org/10.1186/s13052-022-01291-w
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author Chaghazardi, Mahnaz
Janatolmakan, Maryam
Rezaeian, Shahab
Khatony, Alireza
author_facet Chaghazardi, Mahnaz
Janatolmakan, Maryam
Rezaeian, Shahab
Khatony, Alireza
author_sort Chaghazardi, Mahnaz
collection PubMed
description BACKGROUND: Evidence suggests that many parents who care for their children with cancer are affected by the care burden due to the chronic nature of the disease. The aim of this study was to determine the burden of care level and its related factors in the caregivers of children with cancer. METHOD: A total of 270 caregivers of children with cancer were included in this cross-sectional study by convenience sampling method. Data collection tools were a personal information form and the Novak & Guest’s Caregiver Burden Inventory. Data were analyzed by descriptive and inferential statistics (chi-square and univariate linear regression model). RESULTS: The mean ages of caregivers and patients were 35.7 ± 7.0 and 3.1 ± 1.6 years, respectively. The mean care burden was 68.4 ± 1.5 out of 120. About 50 and 36% of caregivers had moderate and severe care burden, respectively. CONCLUSION: Caregivers had moderate to high care burden. A number of factors associated with care burden were identified. Health authorities need to take family-centered measures to reduce the burden of caregivers.
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spelling pubmed-91952242022-06-15 Care burden and associated factors in caregivers of children with cancer Chaghazardi, Mahnaz Janatolmakan, Maryam Rezaeian, Shahab Khatony, Alireza Ital J Pediatr Research BACKGROUND: Evidence suggests that many parents who care for their children with cancer are affected by the care burden due to the chronic nature of the disease. The aim of this study was to determine the burden of care level and its related factors in the caregivers of children with cancer. METHOD: A total of 270 caregivers of children with cancer were included in this cross-sectional study by convenience sampling method. Data collection tools were a personal information form and the Novak & Guest’s Caregiver Burden Inventory. Data were analyzed by descriptive and inferential statistics (chi-square and univariate linear regression model). RESULTS: The mean ages of caregivers and patients were 35.7 ± 7.0 and 3.1 ± 1.6 years, respectively. The mean care burden was 68.4 ± 1.5 out of 120. About 50 and 36% of caregivers had moderate and severe care burden, respectively. CONCLUSION: Caregivers had moderate to high care burden. A number of factors associated with care burden were identified. Health authorities need to take family-centered measures to reduce the burden of caregivers. BioMed Central 2022-06-13 /pmc/articles/PMC9195224/ /pubmed/35698160 http://dx.doi.org/10.1186/s13052-022-01291-w Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Chaghazardi, Mahnaz
Janatolmakan, Maryam
Rezaeian, Shahab
Khatony, Alireza
Care burden and associated factors in caregivers of children with cancer
title Care burden and associated factors in caregivers of children with cancer
title_full Care burden and associated factors in caregivers of children with cancer
title_fullStr Care burden and associated factors in caregivers of children with cancer
title_full_unstemmed Care burden and associated factors in caregivers of children with cancer
title_short Care burden and associated factors in caregivers of children with cancer
title_sort care burden and associated factors in caregivers of children with cancer
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9195224/
https://www.ncbi.nlm.nih.gov/pubmed/35698160
http://dx.doi.org/10.1186/s13052-022-01291-w
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