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Lived experiences of children and adolescents with obsessive–compulsive disorder: interpretative phenomenological analysis
BACKGROUND: Childhood obsessive–compulsive disorder (OCD) is distinct from OCD in adults. It can be severely disabling and there is little qualitative research on OCD in children. The present study aims to explore the subjective experiences of diagnosis, treatment processes and meaning of recovery i...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9204989/ https://www.ncbi.nlm.nih.gov/pubmed/35710566 http://dx.doi.org/10.1186/s13034-022-00478-7 |
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author | Sravanti, Lakshmi Kommu, John Vijay Sagar Girimaji, Satish Chandra Seshadri, Shekhar |
author_facet | Sravanti, Lakshmi Kommu, John Vijay Sagar Girimaji, Satish Chandra Seshadri, Shekhar |
author_sort | Sravanti, Lakshmi |
collection | PubMed |
description | BACKGROUND: Childhood obsessive–compulsive disorder (OCD) is distinct from OCD in adults. It can be severely disabling and there is little qualitative research on OCD in children. The present study aims to explore the subjective experiences of diagnosis, treatment processes and meaning of recovery in children and adolescents suffering from OCD and provide a conceptual model of the illness. METHODS: It is a qualitative study of ten children and adolescents selected by purposive sampling. MINI KID 6.0, Children’s Yale-Brown Obsessive–Compulsive Scale and Clinical Global Impression-Severity Scale were administered at the time of recruitment of subjects into the study. Interviews were conducted using an in-depth semi-structured interview guide and audio-recorded. The transcribed interviews were analyzed using Interpretative Phenomenological Analysis (IPA). The study sought to explore participants’ sense-making of their world, their thoughts, feelings and perceptions through interpretative enquiry. The findings were confirmed by a process called investigator triangulation, member check and peer validation. RESULTS: IPA yielded five major themes—‘illness perception changes over time’, ‘disclosure on a spectrum’, ‘cascading effects of OCD’, ‘treatment infuses hope and helps’, and ‘navigating through OCD’. A summary of these themes and their subthemes is presented as a conceptual model. The essence of this model is to show the inter-relationship between themes and provide a comprehensive understanding of the phenomenon of OCD. CONCLUSIONS: To the best of our knowledge, this is the first study to explore lived experiences of children and adolescents with OCD using interpretative phenomenological analysis (IPA). It was noted that perception of illness and treatment processes evolves over time, and recovery is viewed as a process. Future qualitative research can be carried out with a focus on ‘therapist-related barriers’ or ‘student–teacher dyads’ that can inform clinical practice and school policies respectively. Trial registration NIMH/DO/IEC (BEH. Sc. DIV)/2018, l1 April 2018. |
format | Online Article Text |
id | pubmed-9204989 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-92049892022-06-18 Lived experiences of children and adolescents with obsessive–compulsive disorder: interpretative phenomenological analysis Sravanti, Lakshmi Kommu, John Vijay Sagar Girimaji, Satish Chandra Seshadri, Shekhar Child Adolesc Psychiatry Ment Health Research BACKGROUND: Childhood obsessive–compulsive disorder (OCD) is distinct from OCD in adults. It can be severely disabling and there is little qualitative research on OCD in children. The present study aims to explore the subjective experiences of diagnosis, treatment processes and meaning of recovery in children and adolescents suffering from OCD and provide a conceptual model of the illness. METHODS: It is a qualitative study of ten children and adolescents selected by purposive sampling. MINI KID 6.0, Children’s Yale-Brown Obsessive–Compulsive Scale and Clinical Global Impression-Severity Scale were administered at the time of recruitment of subjects into the study. Interviews were conducted using an in-depth semi-structured interview guide and audio-recorded. The transcribed interviews were analyzed using Interpretative Phenomenological Analysis (IPA). The study sought to explore participants’ sense-making of their world, their thoughts, feelings and perceptions through interpretative enquiry. The findings were confirmed by a process called investigator triangulation, member check and peer validation. RESULTS: IPA yielded five major themes—‘illness perception changes over time’, ‘disclosure on a spectrum’, ‘cascading effects of OCD’, ‘treatment infuses hope and helps’, and ‘navigating through OCD’. A summary of these themes and their subthemes is presented as a conceptual model. The essence of this model is to show the inter-relationship between themes and provide a comprehensive understanding of the phenomenon of OCD. CONCLUSIONS: To the best of our knowledge, this is the first study to explore lived experiences of children and adolescents with OCD using interpretative phenomenological analysis (IPA). It was noted that perception of illness and treatment processes evolves over time, and recovery is viewed as a process. Future qualitative research can be carried out with a focus on ‘therapist-related barriers’ or ‘student–teacher dyads’ that can inform clinical practice and school policies respectively. Trial registration NIMH/DO/IEC (BEH. Sc. DIV)/2018, l1 April 2018. BioMed Central 2022-06-16 /pmc/articles/PMC9204989/ /pubmed/35710566 http://dx.doi.org/10.1186/s13034-022-00478-7 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Sravanti, Lakshmi Kommu, John Vijay Sagar Girimaji, Satish Chandra Seshadri, Shekhar Lived experiences of children and adolescents with obsessive–compulsive disorder: interpretative phenomenological analysis |
title | Lived experiences of children and adolescents with obsessive–compulsive disorder: interpretative phenomenological analysis |
title_full | Lived experiences of children and adolescents with obsessive–compulsive disorder: interpretative phenomenological analysis |
title_fullStr | Lived experiences of children and adolescents with obsessive–compulsive disorder: interpretative phenomenological analysis |
title_full_unstemmed | Lived experiences of children and adolescents with obsessive–compulsive disorder: interpretative phenomenological analysis |
title_short | Lived experiences of children and adolescents with obsessive–compulsive disorder: interpretative phenomenological analysis |
title_sort | lived experiences of children and adolescents with obsessive–compulsive disorder: interpretative phenomenological analysis |
topic | Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9204989/ https://www.ncbi.nlm.nih.gov/pubmed/35710566 http://dx.doi.org/10.1186/s13034-022-00478-7 |
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