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Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index
Psoriasis is a chronic skin disease, that often develops below the age of 18. In an integrated approach to childhood psoriasis, the impact of psoriasis on family members merits consideration. In this study, the impact of childhood psoriasis on caregivers (61 mothers and 4 fathers) of 65 children (ag...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Society for Publication of Acta Dermato-Venereologica
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9207654/ https://www.ncbi.nlm.nih.gov/pubmed/32725260 http://dx.doi.org/10.2340/00015555-3602 |
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author | ZYCHOWSKA, Magdalena REICH, Adam MAJ, Joanna JANKOWSKA-KONSUR, Alina SZEPIETOWSKI, Jacek C. |
author_facet | ZYCHOWSKA, Magdalena REICH, Adam MAJ, Joanna JANKOWSKA-KONSUR, Alina SZEPIETOWSKI, Jacek C. |
author_sort | ZYCHOWSKA, Magdalena |
collection | PubMed |
description | Psoriasis is a chronic skin disease, that often develops below the age of 18. In an integrated approach to childhood psoriasis, the impact of psoriasis on family members merits consideration. In this study, the impact of childhood psoriasis on caregivers (61 mothers and 4 fathers) of 65 children (age range 5-17.5 years) was measured using Family Dermatology Life Quality Index (FDLQI). Childhood psoriasis exerted a substantial impact on the QoL of caregivers (mean FDLQI 13.62 ± 6.15 points). Caregivers rated routine household expenditure, time spent caring for the skin of the child, and emotional distress as the areas most impacted by psoriasis. The areas least affected were parent-child relationships, and caregivers’ social lives. The impact of other people’s reactions to the child’s disease was rated as more severe by caregivers of girls compared with those of boys (p = 0.004). |
format | Online Article Text |
id | pubmed-9207654 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | Society for Publication of Acta Dermato-Venereologica |
record_format | MEDLINE/PubMed |
spelling | pubmed-92076542022-10-20 Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index ZYCHOWSKA, Magdalena REICH, Adam MAJ, Joanna JANKOWSKA-KONSUR, Alina SZEPIETOWSKI, Jacek C. Acta Derm Venereol Clinical Report Psoriasis is a chronic skin disease, that often develops below the age of 18. In an integrated approach to childhood psoriasis, the impact of psoriasis on family members merits consideration. In this study, the impact of childhood psoriasis on caregivers (61 mothers and 4 fathers) of 65 children (age range 5-17.5 years) was measured using Family Dermatology Life Quality Index (FDLQI). Childhood psoriasis exerted a substantial impact on the QoL of caregivers (mean FDLQI 13.62 ± 6.15 points). Caregivers rated routine household expenditure, time spent caring for the skin of the child, and emotional distress as the areas most impacted by psoriasis. The areas least affected were parent-child relationships, and caregivers’ social lives. The impact of other people’s reactions to the child’s disease was rated as more severe by caregivers of girls compared with those of boys (p = 0.004). Society for Publication of Acta Dermato-Venereologica 2020-08-18 /pmc/articles/PMC9207654/ /pubmed/32725260 http://dx.doi.org/10.2340/00015555-3602 Text en © 2020 Acta Dermato-Venereologica https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the CC BY-NC license |
spellingShingle | Clinical Report ZYCHOWSKA, Magdalena REICH, Adam MAJ, Joanna JANKOWSKA-KONSUR, Alina SZEPIETOWSKI, Jacek C. Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index |
title | Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index |
title_full | Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index |
title_fullStr | Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index |
title_full_unstemmed | Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index |
title_short | Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index |
title_sort | impact of childhood psoriasis on caregivers’ quality of life, measured with family dermatology life quality index |
topic | Clinical Report |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9207654/ https://www.ncbi.nlm.nih.gov/pubmed/32725260 http://dx.doi.org/10.2340/00015555-3602 |
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