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Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index

Psoriasis is a chronic skin disease, that often develops below the age of 18. In an integrated approach to childhood psoriasis, the impact of psoriasis on family members merits consideration. In this study, the impact of childhood psoriasis on caregivers (61 mothers and 4 fathers) of 65 children (ag...

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Autores principales: ZYCHOWSKA, Magdalena, REICH, Adam, MAJ, Joanna, JANKOWSKA-KONSUR, Alina, SZEPIETOWSKI, Jacek C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Society for Publication of Acta Dermato-Venereologica 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9207654/
https://www.ncbi.nlm.nih.gov/pubmed/32725260
http://dx.doi.org/10.2340/00015555-3602
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author ZYCHOWSKA, Magdalena
REICH, Adam
MAJ, Joanna
JANKOWSKA-KONSUR, Alina
SZEPIETOWSKI, Jacek C.
author_facet ZYCHOWSKA, Magdalena
REICH, Adam
MAJ, Joanna
JANKOWSKA-KONSUR, Alina
SZEPIETOWSKI, Jacek C.
author_sort ZYCHOWSKA, Magdalena
collection PubMed
description Psoriasis is a chronic skin disease, that often develops below the age of 18. In an integrated approach to childhood psoriasis, the impact of psoriasis on family members merits consideration. In this study, the impact of childhood psoriasis on caregivers (61 mothers and 4 fathers) of 65 children (age range 5-17.5 years) was measured using Family Dermatology Life Quality Index (FDLQI). Childhood psoriasis exerted a substantial impact on the QoL of caregivers (mean FDLQI 13.62 ± 6.15 points). Caregivers rated routine household expenditure, time spent caring for the skin of the child, and emotional distress as the areas most impacted by psoriasis. The areas least affected were parent-child relationships, and caregivers’ social lives. The impact of other people’s reactions to the child’s disease was rated as more severe by caregivers of girls compared with those of boys (p = 0.004).
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spelling pubmed-92076542022-10-20 Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index ZYCHOWSKA, Magdalena REICH, Adam MAJ, Joanna JANKOWSKA-KONSUR, Alina SZEPIETOWSKI, Jacek C. Acta Derm Venereol Clinical Report Psoriasis is a chronic skin disease, that often develops below the age of 18. In an integrated approach to childhood psoriasis, the impact of psoriasis on family members merits consideration. In this study, the impact of childhood psoriasis on caregivers (61 mothers and 4 fathers) of 65 children (age range 5-17.5 years) was measured using Family Dermatology Life Quality Index (FDLQI). Childhood psoriasis exerted a substantial impact on the QoL of caregivers (mean FDLQI 13.62 ± 6.15 points). Caregivers rated routine household expenditure, time spent caring for the skin of the child, and emotional distress as the areas most impacted by psoriasis. The areas least affected were parent-child relationships, and caregivers’ social lives. The impact of other people’s reactions to the child’s disease was rated as more severe by caregivers of girls compared with those of boys (p = 0.004). Society for Publication of Acta Dermato-Venereologica 2020-08-18 /pmc/articles/PMC9207654/ /pubmed/32725260 http://dx.doi.org/10.2340/00015555-3602 Text en © 2020 Acta Dermato-Venereologica https://creativecommons.org/licenses/by-nc/4.0/This is an open access article under the CC BY-NC license
spellingShingle Clinical Report
ZYCHOWSKA, Magdalena
REICH, Adam
MAJ, Joanna
JANKOWSKA-KONSUR, Alina
SZEPIETOWSKI, Jacek C.
Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index
title Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index
title_full Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index
title_fullStr Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index
title_full_unstemmed Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index
title_short Impact of Childhood Psoriasis on Caregivers’ Quality of Life, Measured with Family Dermatology Life Quality Index
title_sort impact of childhood psoriasis on caregivers’ quality of life, measured with family dermatology life quality index
topic Clinical Report
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9207654/
https://www.ncbi.nlm.nih.gov/pubmed/32725260
http://dx.doi.org/10.2340/00015555-3602
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