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What role can decentralized trial designs play to improve rare disease studies?
People affected by rare diseases want to be involved in research and the search for new treatments. Randomized controlled trials remain the best way of finding new interventions, but many elements of traditional study design are not best suited for rare diseases. Barriers to patients and families in...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9207830/ https://www.ncbi.nlm.nih.gov/pubmed/35725484 http://dx.doi.org/10.1186/s13023-022-02388-5 |