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303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population

OBJECTIVES/GOALS: Nutrition plays an imperative role in the management of Duchenne and Becker Muscular Dystrophy, but guidelines for nutrition counseling are absent. This study was designed to gain insight into provider experiences with nutritional services to find solutions for future counseling. M...

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Autores principales: Fawcett, Kindann, Veerapandiyan, Aravindhan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9209139/
http://dx.doi.org/10.1017/cts.2022.167
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author Fawcett, Kindann
Veerapandiyan, Aravindhan
author_facet Fawcett, Kindann
Veerapandiyan, Aravindhan
author_sort Fawcett, Kindann
collection PubMed
description OBJECTIVES/GOALS: Nutrition plays an imperative role in the management of Duchenne and Becker Muscular Dystrophy, but guidelines for nutrition counseling are absent. This study was designed to gain insight into provider experiences with nutritional services to find solutions for future counseling. METHODS/STUDY POPULATION: In this prospective, observational exploratory study, semi structured interviews were conducted at Certified Duchenne Care Centers (CDCCs) to gain insight on providers experiences with nutritional services and to identify barriers and solutions to nutrition education/care/counseling at CDCCs. Interviews were video recorded and then transcribed for themes. Overarching themes gave insight for a quantitative survey to be sent out, assessing all members on the multidisciplinary team perceptions, confidence, barriers, and solutions to providing nutritional care to Duchenne and Becker patients. RESULTS/ANTICIPATED RESULTS: We anticipate this study will provide novel data and key information from providers regarding nutrition education /care/counseling efforts in the multidisciplinary care of neuromuscular diseases. DISCUSSION/SIGNIFICANCE: Results will demonstrate the need for higher standards and more specific recommendations in nutritional services at CDCCs, while providing a framework for referrals, continuing education opportunities, and increasing providers’ confidence and abilities to provide sound nutritional advice.
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spelling pubmed-92091392022-07-01 303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population Fawcett, Kindann Veerapandiyan, Aravindhan J Clin Transl Sci Valued Approaches OBJECTIVES/GOALS: Nutrition plays an imperative role in the management of Duchenne and Becker Muscular Dystrophy, but guidelines for nutrition counseling are absent. This study was designed to gain insight into provider experiences with nutritional services to find solutions for future counseling. METHODS/STUDY POPULATION: In this prospective, observational exploratory study, semi structured interviews were conducted at Certified Duchenne Care Centers (CDCCs) to gain insight on providers experiences with nutritional services and to identify barriers and solutions to nutrition education/care/counseling at CDCCs. Interviews were video recorded and then transcribed for themes. Overarching themes gave insight for a quantitative survey to be sent out, assessing all members on the multidisciplinary team perceptions, confidence, barriers, and solutions to providing nutritional care to Duchenne and Becker patients. RESULTS/ANTICIPATED RESULTS: We anticipate this study will provide novel data and key information from providers regarding nutrition education /care/counseling efforts in the multidisciplinary care of neuromuscular diseases. DISCUSSION/SIGNIFICANCE: Results will demonstrate the need for higher standards and more specific recommendations in nutritional services at CDCCs, while providing a framework for referrals, continuing education opportunities, and increasing providers’ confidence and abilities to provide sound nutritional advice. Cambridge University Press 2022-04-19 /pmc/articles/PMC9209139/ http://dx.doi.org/10.1017/cts.2022.167 Text en © The Association for Clinical and Translational Science 2022 https://creativecommons.org/licenses/by-nc-nd/4.0/This is an Open Access article, distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives licence (https://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is unaltered and is properly cited. The written permission of Cambridge University Press must be obtained for commercial re-use or in order to create a derivative work.
spellingShingle Valued Approaches
Fawcett, Kindann
Veerapandiyan, Aravindhan
303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population
title 303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population
title_full 303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population
title_fullStr 303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population
title_full_unstemmed 303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population
title_short 303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population
title_sort 303 providers assessment of nutritional practices for the duchenne and becker muscular dystrophy population
topic Valued Approaches
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9209139/
http://dx.doi.org/10.1017/cts.2022.167
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