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303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population
OBJECTIVES/GOALS: Nutrition plays an imperative role in the management of Duchenne and Becker Muscular Dystrophy, but guidelines for nutrition counseling are absent. This study was designed to gain insight into provider experiences with nutritional services to find solutions for future counseling. M...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Cambridge University Press
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9209139/ http://dx.doi.org/10.1017/cts.2022.167 |
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author | Fawcett, Kindann Veerapandiyan, Aravindhan |
author_facet | Fawcett, Kindann Veerapandiyan, Aravindhan |
author_sort | Fawcett, Kindann |
collection | PubMed |
description | OBJECTIVES/GOALS: Nutrition plays an imperative role in the management of Duchenne and Becker Muscular Dystrophy, but guidelines for nutrition counseling are absent. This study was designed to gain insight into provider experiences with nutritional services to find solutions for future counseling. METHODS/STUDY POPULATION: In this prospective, observational exploratory study, semi structured interviews were conducted at Certified Duchenne Care Centers (CDCCs) to gain insight on providers experiences with nutritional services and to identify barriers and solutions to nutrition education/care/counseling at CDCCs. Interviews were video recorded and then transcribed for themes. Overarching themes gave insight for a quantitative survey to be sent out, assessing all members on the multidisciplinary team perceptions, confidence, barriers, and solutions to providing nutritional care to Duchenne and Becker patients. RESULTS/ANTICIPATED RESULTS: We anticipate this study will provide novel data and key information from providers regarding nutrition education /care/counseling efforts in the multidisciplinary care of neuromuscular diseases. DISCUSSION/SIGNIFICANCE: Results will demonstrate the need for higher standards and more specific recommendations in nutritional services at CDCCs, while providing a framework for referrals, continuing education opportunities, and increasing providers’ confidence and abilities to provide sound nutritional advice. |
format | Online Article Text |
id | pubmed-9209139 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | Cambridge University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-92091392022-07-01 303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population Fawcett, Kindann Veerapandiyan, Aravindhan J Clin Transl Sci Valued Approaches OBJECTIVES/GOALS: Nutrition plays an imperative role in the management of Duchenne and Becker Muscular Dystrophy, but guidelines for nutrition counseling are absent. This study was designed to gain insight into provider experiences with nutritional services to find solutions for future counseling. METHODS/STUDY POPULATION: In this prospective, observational exploratory study, semi structured interviews were conducted at Certified Duchenne Care Centers (CDCCs) to gain insight on providers experiences with nutritional services and to identify barriers and solutions to nutrition education/care/counseling at CDCCs. Interviews were video recorded and then transcribed for themes. Overarching themes gave insight for a quantitative survey to be sent out, assessing all members on the multidisciplinary team perceptions, confidence, barriers, and solutions to providing nutritional care to Duchenne and Becker patients. RESULTS/ANTICIPATED RESULTS: We anticipate this study will provide novel data and key information from providers regarding nutrition education /care/counseling efforts in the multidisciplinary care of neuromuscular diseases. DISCUSSION/SIGNIFICANCE: Results will demonstrate the need for higher standards and more specific recommendations in nutritional services at CDCCs, while providing a framework for referrals, continuing education opportunities, and increasing providers’ confidence and abilities to provide sound nutritional advice. Cambridge University Press 2022-04-19 /pmc/articles/PMC9209139/ http://dx.doi.org/10.1017/cts.2022.167 Text en © The Association for Clinical and Translational Science 2022 https://creativecommons.org/licenses/by-nc-nd/4.0/This is an Open Access article, distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives licence (https://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is unaltered and is properly cited. The written permission of Cambridge University Press must be obtained for commercial re-use or in order to create a derivative work. |
spellingShingle | Valued Approaches Fawcett, Kindann Veerapandiyan, Aravindhan 303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population |
title | 303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population |
title_full | 303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population |
title_fullStr | 303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population |
title_full_unstemmed | 303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population |
title_short | 303 Providers Assessment of Nutritional Practices for the Duchenne and Becker Muscular Dystrophy Population |
title_sort | 303 providers assessment of nutritional practices for the duchenne and becker muscular dystrophy population |
topic | Valued Approaches |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9209139/ http://dx.doi.org/10.1017/cts.2022.167 |
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