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Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program

Adolescent and young adult (AYA, ages 15–39 years) oncology patients are an underserved population with specialized needs. AYA programs are absent from most Canadian centers. We identified a priority list and sequence for new programs to address. Program goals, priorities, and activities were develo...

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Autores principales: Surujballi, Julian, Chan, Grace, Strahlendorf, Caron, Srikanthan, Amirrtha
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9222154/
https://www.ncbi.nlm.nih.gov/pubmed/35735431
http://dx.doi.org/10.3390/curroncol29060322
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author Surujballi, Julian
Chan, Grace
Strahlendorf, Caron
Srikanthan, Amirrtha
author_facet Surujballi, Julian
Chan, Grace
Strahlendorf, Caron
Srikanthan, Amirrtha
author_sort Surujballi, Julian
collection PubMed
description Adolescent and young adult (AYA, ages 15–39 years) oncology patients are an underserved population with specialized needs. AYA programs are absent from most Canadian centers. We identified a priority list and sequence for new programs to address. Program goals, priorities, and activities were developed through literature review, national consensus documents, and expert opinion. Health care providers (HCPs) involved in AYA cancer care, administrators, and patient and family representatives were engaged to co-develop program goals and activities. A modified Delphi technique was used through two iterations followed by an in-person meeting to prioritize program implementation. Consensus was defined as a mean score of less than 2.0 (not important) or 4.0 or greater (important). Items without consensus (scored between 2.0 and 3.99) were discussed at the in-person meeting. Sixty provincial stakeholders completed the Delphi survey across multiple disciplines. Twenty-seven stakeholders attended the in-person meeting. All goals were deemed important, except development of a research program. Patient implementation tasks ranked highest. Priority sequence of implementation was: patient care first, followed by HCP education; patient and family education; program sustainability plan; evaluation; research; then a model for multidisciplinary tumor board review. These represent key goals for new AYA oncology programs and a priority sequence of implementation.
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spelling pubmed-92221542022-06-24 Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program Surujballi, Julian Chan, Grace Strahlendorf, Caron Srikanthan, Amirrtha Curr Oncol Article Adolescent and young adult (AYA, ages 15–39 years) oncology patients are an underserved population with specialized needs. AYA programs are absent from most Canadian centers. We identified a priority list and sequence for new programs to address. Program goals, priorities, and activities were developed through literature review, national consensus documents, and expert opinion. Health care providers (HCPs) involved in AYA cancer care, administrators, and patient and family representatives were engaged to co-develop program goals and activities. A modified Delphi technique was used through two iterations followed by an in-person meeting to prioritize program implementation. Consensus was defined as a mean score of less than 2.0 (not important) or 4.0 or greater (important). Items without consensus (scored between 2.0 and 3.99) were discussed at the in-person meeting. Sixty provincial stakeholders completed the Delphi survey across multiple disciplines. Twenty-seven stakeholders attended the in-person meeting. All goals were deemed important, except development of a research program. Patient implementation tasks ranked highest. Priority sequence of implementation was: patient care first, followed by HCP education; patient and family education; program sustainability plan; evaluation; research; then a model for multidisciplinary tumor board review. These represent key goals for new AYA oncology programs and a priority sequence of implementation. MDPI 2022-06-01 /pmc/articles/PMC9222154/ /pubmed/35735431 http://dx.doi.org/10.3390/curroncol29060322 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Surujballi, Julian
Chan, Grace
Strahlendorf, Caron
Srikanthan, Amirrtha
Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program
title Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program
title_full Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program
title_fullStr Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program
title_full_unstemmed Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program
title_short Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program
title_sort setting priorities for a provincial adolescent and young adult oncology program
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9222154/
https://www.ncbi.nlm.nih.gov/pubmed/35735431
http://dx.doi.org/10.3390/curroncol29060322
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