Cargando…
Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program
Adolescent and young adult (AYA, ages 15–39 years) oncology patients are an underserved population with specialized needs. AYA programs are absent from most Canadian centers. We identified a priority list and sequence for new programs to address. Program goals, priorities, and activities were develo...
Autores principales: | , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2022
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9222154/ https://www.ncbi.nlm.nih.gov/pubmed/35735431 http://dx.doi.org/10.3390/curroncol29060322 |
_version_ | 1784732803009609728 |
---|---|
author | Surujballi, Julian Chan, Grace Strahlendorf, Caron Srikanthan, Amirrtha |
author_facet | Surujballi, Julian Chan, Grace Strahlendorf, Caron Srikanthan, Amirrtha |
author_sort | Surujballi, Julian |
collection | PubMed |
description | Adolescent and young adult (AYA, ages 15–39 years) oncology patients are an underserved population with specialized needs. AYA programs are absent from most Canadian centers. We identified a priority list and sequence for new programs to address. Program goals, priorities, and activities were developed through literature review, national consensus documents, and expert opinion. Health care providers (HCPs) involved in AYA cancer care, administrators, and patient and family representatives were engaged to co-develop program goals and activities. A modified Delphi technique was used through two iterations followed by an in-person meeting to prioritize program implementation. Consensus was defined as a mean score of less than 2.0 (not important) or 4.0 or greater (important). Items without consensus (scored between 2.0 and 3.99) were discussed at the in-person meeting. Sixty provincial stakeholders completed the Delphi survey across multiple disciplines. Twenty-seven stakeholders attended the in-person meeting. All goals were deemed important, except development of a research program. Patient implementation tasks ranked highest. Priority sequence of implementation was: patient care first, followed by HCP education; patient and family education; program sustainability plan; evaluation; research; then a model for multidisciplinary tumor board review. These represent key goals for new AYA oncology programs and a priority sequence of implementation. |
format | Online Article Text |
id | pubmed-9222154 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-92221542022-06-24 Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program Surujballi, Julian Chan, Grace Strahlendorf, Caron Srikanthan, Amirrtha Curr Oncol Article Adolescent and young adult (AYA, ages 15–39 years) oncology patients are an underserved population with specialized needs. AYA programs are absent from most Canadian centers. We identified a priority list and sequence for new programs to address. Program goals, priorities, and activities were developed through literature review, national consensus documents, and expert opinion. Health care providers (HCPs) involved in AYA cancer care, administrators, and patient and family representatives were engaged to co-develop program goals and activities. A modified Delphi technique was used through two iterations followed by an in-person meeting to prioritize program implementation. Consensus was defined as a mean score of less than 2.0 (not important) or 4.0 or greater (important). Items without consensus (scored between 2.0 and 3.99) were discussed at the in-person meeting. Sixty provincial stakeholders completed the Delphi survey across multiple disciplines. Twenty-seven stakeholders attended the in-person meeting. All goals were deemed important, except development of a research program. Patient implementation tasks ranked highest. Priority sequence of implementation was: patient care first, followed by HCP education; patient and family education; program sustainability plan; evaluation; research; then a model for multidisciplinary tumor board review. These represent key goals for new AYA oncology programs and a priority sequence of implementation. MDPI 2022-06-01 /pmc/articles/PMC9222154/ /pubmed/35735431 http://dx.doi.org/10.3390/curroncol29060322 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Surujballi, Julian Chan, Grace Strahlendorf, Caron Srikanthan, Amirrtha Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program |
title | Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program |
title_full | Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program |
title_fullStr | Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program |
title_full_unstemmed | Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program |
title_short | Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program |
title_sort | setting priorities for a provincial adolescent and young adult oncology program |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9222154/ https://www.ncbi.nlm.nih.gov/pubmed/35735431 http://dx.doi.org/10.3390/curroncol29060322 |
work_keys_str_mv | AT surujballijulian settingprioritiesforaprovincialadolescentandyoungadultoncologyprogram AT changrace settingprioritiesforaprovincialadolescentandyoungadultoncologyprogram AT strahlendorfcaron settingprioritiesforaprovincialadolescentandyoungadultoncologyprogram AT srikanthanamirrtha settingprioritiesforaprovincialadolescentandyoungadultoncologyprogram |