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Experiences of Carers and People with Dementia from Ethnic Minority Groups Managing Eating and Drinking at Home in the United Kingdom

Eating and drinking difficulties, such as loss of appetite and swallowing problems, are common in dementia, but little is known about the experiences of ethnic minority groups who are managing these difficulties at home. The purpose of our study was to explore the meaning of food, the impact of deme...

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Autores principales: Nair, Pushpa, Barrado-Martín, Yolanda, Anantapong, Kanthee, Moore, Kirsten, Smith, Christina, Sampson, Elizabeth, Manthorpe, Jill, Walters, Kate, Davies, Nathan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9230659/
https://www.ncbi.nlm.nih.gov/pubmed/35745124
http://dx.doi.org/10.3390/nu14122395
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author Nair, Pushpa
Barrado-Martín, Yolanda
Anantapong, Kanthee
Moore, Kirsten
Smith, Christina
Sampson, Elizabeth
Manthorpe, Jill
Walters, Kate
Davies, Nathan
author_facet Nair, Pushpa
Barrado-Martín, Yolanda
Anantapong, Kanthee
Moore, Kirsten
Smith, Christina
Sampson, Elizabeth
Manthorpe, Jill
Walters, Kate
Davies, Nathan
author_sort Nair, Pushpa
collection PubMed
description Eating and drinking difficulties, such as loss of appetite and swallowing problems, are common in dementia, but little is known about the experiences of ethnic minority groups who are managing these difficulties at home. The purpose of our study was to explore the meaning of food, the impact of dementia on eating and drinking, and carers’ experiences of support. We undertook semi-structured interviews with 17 carers and people with dementia from ethnic minority backgrounds living in England, using thematic analysis to analyse the data. Food/drink had strong links to identity, culture and emotions. Providing culturally familiar foods, celebrating traditional festivals and supporting previous food-related roles promoted reminiscence, which encouraged the people living with dementia to eat and drink, as did social interactions, although these could lead to distress in those with more advanced dementia. Food choices were also influenced by carer strain, generational differences and the impact of health conditions. Despite a strong sense of duty to care for relatives at home, there was low awareness of community support services. The carers expressed a need for culturally tailored support for managing dementia-related eating and drinking difficulties at home. Healthcare professionals must provide contextually relevant advice to carers, being mindful of how cultural backgrounds can affect dietary choices.
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spelling pubmed-92306592022-06-25 Experiences of Carers and People with Dementia from Ethnic Minority Groups Managing Eating and Drinking at Home in the United Kingdom Nair, Pushpa Barrado-Martín, Yolanda Anantapong, Kanthee Moore, Kirsten Smith, Christina Sampson, Elizabeth Manthorpe, Jill Walters, Kate Davies, Nathan Nutrients Article Eating and drinking difficulties, such as loss of appetite and swallowing problems, are common in dementia, but little is known about the experiences of ethnic minority groups who are managing these difficulties at home. The purpose of our study was to explore the meaning of food, the impact of dementia on eating and drinking, and carers’ experiences of support. We undertook semi-structured interviews with 17 carers and people with dementia from ethnic minority backgrounds living in England, using thematic analysis to analyse the data. Food/drink had strong links to identity, culture and emotions. Providing culturally familiar foods, celebrating traditional festivals and supporting previous food-related roles promoted reminiscence, which encouraged the people living with dementia to eat and drink, as did social interactions, although these could lead to distress in those with more advanced dementia. Food choices were also influenced by carer strain, generational differences and the impact of health conditions. Despite a strong sense of duty to care for relatives at home, there was low awareness of community support services. The carers expressed a need for culturally tailored support for managing dementia-related eating and drinking difficulties at home. Healthcare professionals must provide contextually relevant advice to carers, being mindful of how cultural backgrounds can affect dietary choices. MDPI 2022-06-09 /pmc/articles/PMC9230659/ /pubmed/35745124 http://dx.doi.org/10.3390/nu14122395 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Nair, Pushpa
Barrado-Martín, Yolanda
Anantapong, Kanthee
Moore, Kirsten
Smith, Christina
Sampson, Elizabeth
Manthorpe, Jill
Walters, Kate
Davies, Nathan
Experiences of Carers and People with Dementia from Ethnic Minority Groups Managing Eating and Drinking at Home in the United Kingdom
title Experiences of Carers and People with Dementia from Ethnic Minority Groups Managing Eating and Drinking at Home in the United Kingdom
title_full Experiences of Carers and People with Dementia from Ethnic Minority Groups Managing Eating and Drinking at Home in the United Kingdom
title_fullStr Experiences of Carers and People with Dementia from Ethnic Minority Groups Managing Eating and Drinking at Home in the United Kingdom
title_full_unstemmed Experiences of Carers and People with Dementia from Ethnic Minority Groups Managing Eating and Drinking at Home in the United Kingdom
title_short Experiences of Carers and People with Dementia from Ethnic Minority Groups Managing Eating and Drinking at Home in the United Kingdom
title_sort experiences of carers and people with dementia from ethnic minority groups managing eating and drinking at home in the united kingdom
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9230659/
https://www.ncbi.nlm.nih.gov/pubmed/35745124
http://dx.doi.org/10.3390/nu14122395
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