Development and evaluation of a patient education programme for children, adolescents, and young adults with differences of sex development (DSD) and their parents: study protocol of Empower-DSD

BACKGROUND: Differences in sexual development (DSD) are rare diseases, which affect the chromosomal, anatomical or gonadal sex differentiation. Although patient education is recommended as essential in a holistic care approach, standardised programmes are still lacking. The present protocol describe...

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Detalles Bibliográficos
Autores principales: Wiegmann, Sabine, Ernst, Martina, Ihme, Loretta, Wechsung, Katja, Kalender, Ute, Stöckigt, Barbara, Richter-Unruh, Annette, Vögler, Sander, Hiort, Olaf, Jürgensen, Martina, Marshall, Louise, Menrath, Ingo, Schneidewind, Julia, Wagner, Isabel, Rohayem, Julia, Liesenkötter, Klaus-Peter, Wabitsch, Martin, Fuchs, Malaika, Herrmann, Gloria, Lutter, Henriette, Ernst, Gundula, Lehmann, Christine, Haase, Martina, Roll, Stephanie, Schilling, Ralph, Keil, Thomas, Neumann, Uta
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Study Protocol
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9235086/
https://www.ncbi.nlm.nih.gov/pubmed/35761280
http://dx.doi.org/10.1186/s12902-022-01079-3

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