Cargando…

Hemophilia A: Strategies for Improving Long-Term Holistic Management, Adherence, and Quality of Life

Hemophilia A is a rare inherited bleeding disorder characterized by a deficiency in factor VIII. The evolution of currently approved prophylaxis therapy in hemophilia A will be reviewed, including the clinical value of prophylaxis, real-world experience with prophylaxis, and patient quality-of-life...

Descripción completa

Detalles Bibliográficos
Autores principales:	Escobar, Miguel A., Leissinger, Cindy, Young, Guy
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Harborside Press LLC 2022
Materias:	Review
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9236157/ https://www.ncbi.nlm.nih.gov/pubmed/35769336 http://dx.doi.org/10.6004/jadpro.2022.13.4.8

Ejemplares similares

Acquired hemophilia A: emerging treatment options
por: Janbain, Maissaa, et al.
Publicado: (2015)

Strategies to encourage physical activity in patients with hemophilia to improve quality of life
por: Goto, Miwa, et al.
Publicado: (2016)

Treatment Adherence and Health-Related Quality of Life in Patients with Hemophilia in Hong Kong
por: Cheung, Yin Ting, et al.
Publicado: (2022)

Treatment adherence in hemophilia
por: Thornburg, Courtney D, et al.
Publicado: (2017)

Long-term efficacy and safety of subcutaneous concizumab prophylaxis in hemophilia A and hemophilia A/B with inhibitors
por: Shapiro, Amy D., et al.
Publicado: (2022)

Quality of Life in Hemophilia Complicated by Inhibitors
por: Bastani, P, et al.
Publicado: (2012)

Issues in the measurement of quality of life in hemophilia
por: Feldman, Brian M.
Publicado: (2013)

B cell–activating factor modulates the factor VIII immune response in hemophilia A
por: Doshi, Bhavya S., et al.
Publicado: (2021)

The impact of inhibitors on the quality of life in patients with hemophilia
por: Haghpanah, Sezaneh, et al.
Publicado: (2023)

Pharmaceutical system strengthening in Uganda: implementing a holistic, evidence-informed, long-term strategy
por: Oteba, Martin, et al.
Publicado: (2018)

Holistic Consideration of Patients with Schizophrenia to Improve Medication Adherence and Outcomes
por: Lee, Lan-Ting, et al.
Publicado: (2015)

Nonfactor Therapies for Hemophilia
por: Young, Guy
Publicado: (2023)

Health-related quality of life in hemophilia: results of the Hemophilia-Specific Quality of Life Index (Haem-a-Qol) at a Brazilian blood center
por: Ferreira, Adriana Aparecida, et al.
Publicado: (2013)

Clinical Holistic Medicine: A Psychological Theory of Dependency to Improve Quality of Life
por: Ventegodt, Søren, et al.
Publicado: (2004)

Holistic management of DSD
por: Brain, Caroline E., et al.
Publicado: (2010)

Efficacy of EHL N9-GP for on-demand treatment of bleeding episodes in hemophilia B: analysis of pivotal trial data
por: Escobar, Miguel A, et al.
Publicado: (2019)

Holistic evaluation of long‐term earthworm field studies with a fungicide
por: Jänsch, Stephan, et al.
Publicado: (2021)

Managing patient adherence and quality of life in epilepsy
por: Eatock, Joanne, et al.
Publicado: (2007)

Introducing ‘holistic psychology’ for life qualities: A theoretical model for consideration
por: Phan, Huy P., et al.
Publicado: (2021)

Quality of Life, Perception of Disease and Coping Strategies in Patients with Hemophilia in Spain and El Salvador: A Comparative Study
por: Cuesta-Barriuso, Rubén, et al.
Publicado: (2021)

Hepatitis C virus in hemophilia: Health‐related quality of life after successful treatment in the sixth Hemophilia in the Netherlands study
por: Isfordink, Cas J., et al.
Publicado: (2021)

Comprehensive management of hemophilia /
Publicado: (1976)

Health-Related Quality of Life and Association With Arthropathy in Greek Patients with Hemophilia
por: Varaklioti, Agoritsa, et al.
Publicado: (2017)

Health-Related Quality of Life and Psychological Aspects of Adults With Hemophilia in Iran
por: Rambod, Masoume, et al.
Publicado: (2018)

The Importance of Holistic Care at the End of Life
por: Hackett, Jonathan
Publicado: (2017)

The evolution of factor VIIa in the treatment of bleeding in haemophilia with inhibitors
por: Meeks, Shannon L., et al.
Publicado: (2019)

2285: Analysis of racial disparity in the whole blood and plasma of healthy volunteers using rotational thromboelastometry
por: Janbain, Maissaa, et al.
Publicado: (2018)

Practical considerations for laboratories: Implementing a holistic quality management system
por: Pillai, Segaran, et al.
Publicado: (2022)

Generic and disease-specific quality of life among youth and young men with Hemophilia in Canada
por: St-Louis, J., et al.
Publicado: (2016)

A qualitative synthesis of diabetes self-management strategies for long term medical outcomes and quality of life in the UK
por: Frost, Julia, et al.
Publicado: (2014)

IDELVION: A Comprehensive Review of Clinical Trial and Real-World Data
por: Escobar, Miguel, et al.
Publicado: (2022)

Clinical Holistic Medicine (Mindful, Short-Term Psychodynamic Psychotherapy Complemented with Bodywork) Improves Quality of Life, Health, and Ability by Induction of Antonovsky-Salutogenesis
por: Ventegodt, Søren, et al.
Publicado: (2007)

Hemophilia prophylaxis adherence and bleeding using a tailored, frequency‐escalated approach: The Canadian Hemophilia Primary Prophylaxis Study
por: Dover, Saunya, et al.
Publicado: (2020)

Impact of prophylaxis on health‐related quality of life of boys with hemophilia: An analysis of pooled data from 9 countries
por: Usuba, Koyo, et al.
Publicado: (2019)

Once-weekly prophylactic dosing of recombinant factor IX improves adherence in hemophilia B
por: Djambas Khayat, Claudia
Publicado: (2016)

Holistic Processing of Chinese Characters
por: Wong, Alan Chun-Nang, et al.
Publicado: (2011)

The management of hemophilia in elderly patients
por: Franchini, Massimo, et al.
Publicado: (2007)

Measuring the impact of hemophilia on families: Development of the Hemophilia Family Impact Tool (H‐FIT)
por: Dover, Saunya, et al.
Publicado: (2021)

Long-term course of anti-factor VIII antibody in patients with hemophilia A at a single center
por: Yoo, Ki Young, et al.
Publicado: (2016)

Clinical Holistic Medicine: Holistic Pelvic Examination and Holistic Treatment of Infertility
por: Ventegodt, Søren, et al.
Publicado: (2004)

Cannot write session to /tmp/vufind_sessions/sess_l88a9qg94cddsl5g5j35qnv4tq