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‘Do they ever think about people like us?': The experiences of people with learning disabilities in England and Scotland during the COVID-19 pandemic
People with learning disabilities in England and Scotland have experienced an increased risk of illness and death during the COVID-19 pandemic. Drawing on data of a longitudinal qualitative study with 71 disabled people and 31 disability organisations, this article examines the experiences of 24 peo...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9240722/ https://www.ncbi.nlm.nih.gov/pubmed/37461432 http://dx.doi.org/10.1177/02610183221109147 |
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author | Scherer, Nathaniel Wiseman, Phillippa Watson, Nicholas Brunner, Richard Cullingworth, Jane Hameed, Shaffa PEARSON, CHARLOTTE Shakespeare, Tom |
author_facet | Scherer, Nathaniel Wiseman, Phillippa Watson, Nicholas Brunner, Richard Cullingworth, Jane Hameed, Shaffa PEARSON, CHARLOTTE Shakespeare, Tom |
author_sort | Scherer, Nathaniel |
collection | PubMed |
description | People with learning disabilities in England and Scotland have experienced an increased risk of illness and death during the COVID-19 pandemic. Drawing on data of a longitudinal qualitative study with 71 disabled people and 31 disability organisations, this article examines the experiences of 24 people with learning disabilities in England and Scotland during the pandemic, reflecting on what rendered them vulnerable and placed them at risk. Qualitative interviews were conducted with participants and key informants at two timepoints; June–August 2020 and February–April 2021. Findings emerged across four key themes: failure to plan for the needs of people with learning disabilities; the suspension and removal of social care; the impact of the pandemic on people’s everyday routines; and lack of vaccine prioritisation. The inequalities experienced by people with learning disabilities in this study are not particular to the pandemic. We explore the findings in the context of theoretical frameworks of vulnerability, including Fineman’s conceptualisation of a ‘vulnerability paradigm’. We conclude that the structured marginalisation of people with disabilities, entrenched by government action and inaction, have created and exacerbated their vulnerability. Structures, policies and action must change. |
format | Online Article Text |
id | pubmed-9240722 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-92407222022-06-29 ‘Do they ever think about people like us?': The experiences of people with learning disabilities in England and Scotland during the COVID-19 pandemic Scherer, Nathaniel Wiseman, Phillippa Watson, Nicholas Brunner, Richard Cullingworth, Jane Hameed, Shaffa PEARSON, CHARLOTTE Shakespeare, Tom Crit Soc Policy Articles People with learning disabilities in England and Scotland have experienced an increased risk of illness and death during the COVID-19 pandemic. Drawing on data of a longitudinal qualitative study with 71 disabled people and 31 disability organisations, this article examines the experiences of 24 people with learning disabilities in England and Scotland during the pandemic, reflecting on what rendered them vulnerable and placed them at risk. Qualitative interviews were conducted with participants and key informants at two timepoints; June–August 2020 and February–April 2021. Findings emerged across four key themes: failure to plan for the needs of people with learning disabilities; the suspension and removal of social care; the impact of the pandemic on people’s everyday routines; and lack of vaccine prioritisation. The inequalities experienced by people with learning disabilities in this study are not particular to the pandemic. We explore the findings in the context of theoretical frameworks of vulnerability, including Fineman’s conceptualisation of a ‘vulnerability paradigm’. We conclude that the structured marginalisation of people with disabilities, entrenched by government action and inaction, have created and exacerbated their vulnerability. Structures, policies and action must change. SAGE Publications 2022-06-27 2023-08 /pmc/articles/PMC9240722/ /pubmed/37461432 http://dx.doi.org/10.1177/02610183221109147 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Articles Scherer, Nathaniel Wiseman, Phillippa Watson, Nicholas Brunner, Richard Cullingworth, Jane Hameed, Shaffa PEARSON, CHARLOTTE Shakespeare, Tom ‘Do they ever think about people like us?': The experiences of people with learning disabilities in England and Scotland during the COVID-19 pandemic |
title | ‘Do they ever think about people like us?': The experiences of people with learning disabilities in England and Scotland during the COVID-19 pandemic |
title_full | ‘Do they ever think about people like us?': The experiences of people with learning disabilities in England and Scotland during the COVID-19 pandemic |
title_fullStr | ‘Do they ever think about people like us?': The experiences of people with learning disabilities in England and Scotland during the COVID-19 pandemic |
title_full_unstemmed | ‘Do they ever think about people like us?': The experiences of people with learning disabilities in England and Scotland during the COVID-19 pandemic |
title_short | ‘Do they ever think about people like us?': The experiences of people with learning disabilities in England and Scotland during the COVID-19 pandemic |
title_sort | ‘do they ever think about people like us?': the experiences of people with learning disabilities in england and scotland during the covid-19 pandemic |
topic | Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9240722/ https://www.ncbi.nlm.nih.gov/pubmed/37461432 http://dx.doi.org/10.1177/02610183221109147 |
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