Cargando…

Co-creation with research participants to inform the design of electronic informed consent

OBJECTIVE: This study aimed to provide recommendations for a personalized electronic informed consent interface that is adapted to research participants’ needs and could enable a longitudinal interaction between the participants and the research team. METHODS: The co-creation process consisted of th...

Descripción completa

Detalles Bibliográficos
Autores principales:	De Sutter, Evelien, Geerts, David, Borry, Pascal, Coteur, Kristien, Bamps, Dorien, Marynissen, Heleen, Ampe, Els, Geenens, Els, Depré, Marleen, Huys, Isabelle
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	SAGE Publications 2022
Materias:	Original Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9243370/ https://www.ncbi.nlm.nih.gov/pubmed/35783466 http://dx.doi.org/10.1177/20552076221109068

Ejemplares similares

Personalized and long-term electronic informed consent in clinical research: stakeholder views
por: De Sutter, Evelien, et al.
Publicado: (2021)

First‐in‐human development of a pharmacodynamic biomarker for PAC(1) receptor antagonists using intradermal injections of maxadilan
por: Marynissen, Heleen, et al.
Publicado: (2022)

Informing a European guidance framework on electronic informed consent in clinical research: a qualitative study
por: De Sutter, Evelien, et al.
Publicado: (2023)

Digitizing the Informed Consent Process: A Review of the Regulatory Landscape in the European Union
por: De Sutter, Evelien, et al.
Publicado: (2022)

Rethinking informed consent in the time of COVID-19: An exploratory survey
por: De Sutter, Evelien, et al.
Publicado: (2022)

Implementation of Electronic Informed Consent in Biomedical Research and Stakeholders’ Perspectives: Systematic Review
por: De Sutter, Evelien, et al.
Publicado: (2020)

Using provocative design to foster electronic informed consent innovation
por: De Sutter, Evelien, et al.
Publicado: (2022)

Clinical Research in Neonates: Redesigning the Informed Consent Process in the Digital Era
por: De Sutter, Evelien, et al.
Publicado: (2021)

Readability of informed consent forms for whole-exome and whole-genome sequencing
por: Niemiec, Emilia, et al.
Publicado: (2017)

Communicating genetic information to family members: analysis of consent forms for diagnostic genomic sequencing
por: Phillips, Amicia, et al.
Publicado: (2020)

Written Informed Consent for Participation in a Study and Reduction in Consent Rate
por: Tamakoshi, Akiko, et al.
Publicado: (2008)

Old Challenges or New Issues? Genetic Health Professionals’ Experiences Obtaining Informed Consent in Diagnostic Genomic Sequencing
por: Vears, Danya F., et al.
Publicado: (2020)

The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data
por: Bannier, Elise, et al.
Publicado: (2021)

Participant Informed Consent in Cluster Randomized Trials: Review
por: Giraudeau, Bruno, et al.
Publicado: (2012)

Informed Consent Process: Foundation of the Researcher-participant Bond
por: Sil, Amrita, et al.
Publicado: (2017)

Health literacy predicts participant understanding of orally-presented informed consent information
por: Ownby, Raymond L, et al.
Publicado: (2015)

Challenges related to data protection in clinical research before and during the COVID-19 pandemic: An exploratory study
por: Lalova-Spinks, Teodora, et al.
Publicado: (2022)

Informed consent
por: Liew, J., et al.
Publicado: (2021)

When is Informed Consent “Informed”?
por: Kavic, Michael S.
Publicado: (1997)

How informed is the informed consent?
por: Vikas, H, et al.
Publicado: (2021)

Ensuring that informed consent is really an informed consent: Role of videography
por: Ghooi, Ravindra B.
Publicado: (2014)

Self-directed multimedia process for delivering participant informed consent
por: Chapman, Niamh, et al.
Publicado: (2020)

Waivers of informed consent in research with competent participants and the Declaration of Helsinki
por: Dal-Ré, Rafael
Publicado: (2023)

What information and the extent of information research participants need in informed consent forms: a multi-country survey
por: Karbwang, Juntra, et al.
Publicado: (2018)

Preoperative Informed Consent: Is It Truly Informed?
por: Jawaid, M, et al.
Publicado: (2012)

Informed Consent in the (Mis) Information Age
por: Nelson, Erin L.
Publicado: (2004)

Electronic informed consent
por: Stevens, Natasha
Publicado: (2013)

Informed consent and research
por: Mandal, Jharna, et al.
Publicado: (2014)

Informed Consent for Braces
por: Jharwal, Vikas, et al.
Publicado: (2014)

Informed Consent on Camera
por: Sontakke, Smita, et al.
Publicado: (2014)

Informed consent and minors
por: Nicolussi, Andrea
Publicado: (2015)

Informed consent for telemedicine
por: Mondal, Himel, et al.
Publicado: (2020)

Consent on Information Sharing
por: Jeje, Jide, et al.
Publicado: (2023)

Developing a digital informed consent app: opportunities and challenges of a new format to inform and obtain consent in public health research
por: Haring, Luuk V., et al.
Publicado: (2023)

Informed consent in critically ill adults participating to a randomized trial
por: Guinchard, Milène, et al.
Publicado: (2020)

An evaluation of the process of informed consent: views from research participants and staff
por: O’ Sullivan, Lydia, et al.
Publicado: (2021)

Consensus on informed consent for participants in cancer clinical studies (2021 edition)
por: Wu, Dawei, et al.
Publicado: (2022)

Reflecting on Earlier Experiences with Unsolicited Findings: Points to Consider for Next-Generation Sequencing and Informed Consent in Diagnostics
por: Rigter, Tessel, et al.
Publicado: (2013)

Record linkage research and informed consent: who consents?
por: Huang, Nicole, et al.
Publicado: (2007)

Interactive Informed Consent: Randomized Comparison with Paper Consents
por: Rowbotham, Michael C., et al.
Publicado: (2013)

Cannot write session to /tmp/vufind_sessions/sess_9pdoepsrjnlp9nhd3l5f45ulbl