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The Andalusian Registry of Donors for Biomedical Research: Five Years of History

The mission of the Andalusian Public Health System Biobank is to offer the best options for biological samples of human origin and associated clinical information, protecting the rights of citizens who donate their samples for research. Since the Andalusian Biobank provides high-quality biological s...

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Autores principales: Aguilar-Quesada, Rocío, Aroca-Siendones, Inés, de la Torre, Leticia, Panadero-Fajardo, Sonia, Rejón, Juan David, Sánchez-López, Ana María, Miranda, Blanca
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9245482/
https://www.ncbi.nlm.nih.gov/pubmed/35822778
http://dx.doi.org/10.3390/biotech10010006
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author Aguilar-Quesada, Rocío
Aroca-Siendones, Inés
de la Torre, Leticia
Panadero-Fajardo, Sonia
Rejón, Juan David
Sánchez-López, Ana María
Miranda, Blanca
author_facet Aguilar-Quesada, Rocío
Aroca-Siendones, Inés
de la Torre, Leticia
Panadero-Fajardo, Sonia
Rejón, Juan David
Sánchez-López, Ana María
Miranda, Blanca
author_sort Aguilar-Quesada, Rocío
collection PubMed
description The mission of the Andalusian Public Health System Biobank is to offer the best options for biological samples of human origin and associated clinical information, protecting the rights of citizens who donate their samples for research. Since the Andalusian Biobank provides high-quality biological samples of all types in a specified format, adapting the preanalytical phase according to the requirements of the research, prospective collection and distribution of samples are being prioritized in order to contribute to the sustainability of the Biobank. The Andalusian Registry of Donors for Biomedical Research is a tool for the recruitment of donors and the prospective collection of samples. Its operation is based on the informed consent of donors for their incorporation into the Registry and contact with possible donors under request from specific projects. An additional advantage of this unique initiative is to ensure that societal actors work together throughout the entire research process, establishing alliances with patient associations and groups to develop joint actions and promote biomedical research. Here, we describe the creation, ethical–legal aspects, management and results of the Andalusian Registry of Donors for Biomedical Research after five years of operation.
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spelling pubmed-92454822022-07-06 The Andalusian Registry of Donors for Biomedical Research: Five Years of History Aguilar-Quesada, Rocío Aroca-Siendones, Inés de la Torre, Leticia Panadero-Fajardo, Sonia Rejón, Juan David Sánchez-López, Ana María Miranda, Blanca BioTech (Basel) Article The mission of the Andalusian Public Health System Biobank is to offer the best options for biological samples of human origin and associated clinical information, protecting the rights of citizens who donate their samples for research. Since the Andalusian Biobank provides high-quality biological samples of all types in a specified format, adapting the preanalytical phase according to the requirements of the research, prospective collection and distribution of samples are being prioritized in order to contribute to the sustainability of the Biobank. The Andalusian Registry of Donors for Biomedical Research is a tool for the recruitment of donors and the prospective collection of samples. Its operation is based on the informed consent of donors for their incorporation into the Registry and contact with possible donors under request from specific projects. An additional advantage of this unique initiative is to ensure that societal actors work together throughout the entire research process, establishing alliances with patient associations and groups to develop joint actions and promote biomedical research. Here, we describe the creation, ethical–legal aspects, management and results of the Andalusian Registry of Donors for Biomedical Research after five years of operation. MDPI 2021-03-12 /pmc/articles/PMC9245482/ /pubmed/35822778 http://dx.doi.org/10.3390/biotech10010006 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) ).
spellingShingle Article
Aguilar-Quesada, Rocío
Aroca-Siendones, Inés
de la Torre, Leticia
Panadero-Fajardo, Sonia
Rejón, Juan David
Sánchez-López, Ana María
Miranda, Blanca
The Andalusian Registry of Donors for Biomedical Research: Five Years of History
title The Andalusian Registry of Donors for Biomedical Research: Five Years of History
title_full The Andalusian Registry of Donors for Biomedical Research: Five Years of History
title_fullStr The Andalusian Registry of Donors for Biomedical Research: Five Years of History
title_full_unstemmed The Andalusian Registry of Donors for Biomedical Research: Five Years of History
title_short The Andalusian Registry of Donors for Biomedical Research: Five Years of History
title_sort andalusian registry of donors for biomedical research: five years of history
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9245482/
https://www.ncbi.nlm.nih.gov/pubmed/35822778
http://dx.doi.org/10.3390/biotech10010006
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