The Co-Creation of a Patient Information Leaflet for Patients With the Rare Eye Infection Acanthamoeba keratitis

Acanthamoeba keratitis (AK) is a rare but severe eye disease. A research engagement event, “The Cornea Day,” in London, UK in 2013, identified the lack of credible information about AK and a need for practical day to day management strategies. Experiences of 15 AK patients attending The Cornea Day w...

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Detalles Bibliográficos
Autores principales: Ekkeshis, Irenie, Mason, Melanie, Watson, Martin, Rowan, Bryony, Carnt, Nicole
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2022
Materias:
Patient Experience Research Brief
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9251946/
https://www.ncbi.nlm.nih.gov/pubmed/35794883
http://dx.doi.org/10.1177/23743735221103031
Descripción
Sumario:Acanthamoeba keratitis (AK) is a rare but severe eye disease. A research engagement event, “The Cornea Day,” in London, UK in 2013, identified the lack of credible information about AK and a need for practical day to day management strategies. Experiences of 15 AK patients attending The Cornea Day were distilled into a survey that was administered to a wider group of 76 patients, carers, researchers, and clinicians. A Patient Information Leaflet was cocreated and then represented to additional patients for final modification. The AK Patient Leaflet (revised 2019) is available in several languages and used globally.

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