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‘Eat, sleep, internet and talk’: an exploratory study of play profile for children living with palliative care needs

BACKGROUND: Play is central to children’s lives. Children living with palliative care needs experience disruption in their play. In this study, we sought to discover the characteristics and patterns of children’s play when receiving care in children’s hospital wards and hospices in Kuwait and the Un...

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Autores principales: Jasem, Zainab A., Darlington, Anne-Sophie, Lambrick, Danielle, Randall, Duncan C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9260576/
https://www.ncbi.nlm.nih.gov/pubmed/35811780
http://dx.doi.org/10.1177/26323524221105100
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author Jasem, Zainab A.
Darlington, Anne-Sophie
Lambrick, Danielle
Randall, Duncan C.
author_facet Jasem, Zainab A.
Darlington, Anne-Sophie
Lambrick, Danielle
Randall, Duncan C.
author_sort Jasem, Zainab A.
collection PubMed
description BACKGROUND: Play is central to children’s lives. Children living with palliative care needs experience disruption in their play. In this study, we sought to discover the characteristics and patterns of children’s play when receiving care in children’s hospital wards and hospices in Kuwait and the United Kingdom. METHODS: A qualitative nonparticipatory observation design was used. Thirty-one children were observed, between the ages of 5 and 11 years, all diagnosed with life-limiting or life-threatening conditions and receiving palliative care. The data were analysed using content analysis. RESULTS: The children’s illnesses were negatively impacting their ability to have typical play for their age and development. The children’s interactive play was with grown-ups and very rarely with other children. This was associated with isolation precautions, the child’s need for assistance and a lack of play resources that match children’s physical and cognitive abilities. This gave rise to their engagement in more sedentary, solitary play. The findings of the study did not indicate significant cultural differences between the two countries. CONCLUSION: Children living with palliative care needs may be socially isolated due to their illnesses and their play participation can be limited. Understanding the influencing factors that determine these children’s play is essential for implementing effective modifications to enhance their play routines.
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spelling pubmed-92605762022-07-08 ‘Eat, sleep, internet and talk’: an exploratory study of play profile for children living with palliative care needs Jasem, Zainab A. Darlington, Anne-Sophie Lambrick, Danielle Randall, Duncan C. Palliat Care Soc Pract Original Research BACKGROUND: Play is central to children’s lives. Children living with palliative care needs experience disruption in their play. In this study, we sought to discover the characteristics and patterns of children’s play when receiving care in children’s hospital wards and hospices in Kuwait and the United Kingdom. METHODS: A qualitative nonparticipatory observation design was used. Thirty-one children were observed, between the ages of 5 and 11 years, all diagnosed with life-limiting or life-threatening conditions and receiving palliative care. The data were analysed using content analysis. RESULTS: The children’s illnesses were negatively impacting their ability to have typical play for their age and development. The children’s interactive play was with grown-ups and very rarely with other children. This was associated with isolation precautions, the child’s need for assistance and a lack of play resources that match children’s physical and cognitive abilities. This gave rise to their engagement in more sedentary, solitary play. The findings of the study did not indicate significant cultural differences between the two countries. CONCLUSION: Children living with palliative care needs may be socially isolated due to their illnesses and their play participation can be limited. Understanding the influencing factors that determine these children’s play is essential for implementing effective modifications to enhance their play routines. SAGE Publications 2022-07-04 /pmc/articles/PMC9260576/ /pubmed/35811780 http://dx.doi.org/10.1177/26323524221105100 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Original Research
Jasem, Zainab A.
Darlington, Anne-Sophie
Lambrick, Danielle
Randall, Duncan C.
‘Eat, sleep, internet and talk’: an exploratory study of play profile for children living with palliative care needs
title ‘Eat, sleep, internet and talk’: an exploratory study of play profile for children living with palliative care needs
title_full ‘Eat, sleep, internet and talk’: an exploratory study of play profile for children living with palliative care needs
title_fullStr ‘Eat, sleep, internet and talk’: an exploratory study of play profile for children living with palliative care needs
title_full_unstemmed ‘Eat, sleep, internet and talk’: an exploratory study of play profile for children living with palliative care needs
title_short ‘Eat, sleep, internet and talk’: an exploratory study of play profile for children living with palliative care needs
title_sort ‘eat, sleep, internet and talk’: an exploratory study of play profile for children living with palliative care needs
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9260576/
https://www.ncbi.nlm.nih.gov/pubmed/35811780
http://dx.doi.org/10.1177/26323524221105100
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