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Health-Related Quality of Life and Perceived Burden of Informal Caregivers of Patients with Rare Diseases in Selected European Countries

Most of rare disease (RD) patients are assisted in their homes by their family as informal caregivers, causing a substantial burden among family members devoted to care. The role of informal caregivers has been associated with increased levels of stress, poor physical/mental health and impaired HRQO...

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Detalles Bibliográficos
Autores principales:	Valcárcel-Nazco, Cristina, Ramallo-Fariña, Yolanda, Linertová, Renata, Ramos-Goñi, Juan Manuel, García-Pérez, Lidia, Serrano-Aguilar, Pedro
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	MDPI 2022
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9266302/ https://www.ncbi.nlm.nih.gov/pubmed/35805867 http://dx.doi.org/10.3390/ijerph19138208

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