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Quality of Life instruments and their psychometric properties for use in parents during pregnancy and the postpartum period: a systematic scoping review

PURPOSE: To identify instruments used to measure parents’ Quality of Life (QoL) during pregnancy and the postpartum period, and to describe their characteristics and psychometric properties. METHODS: For this scoping review we conducted systematic literature searches in MEDLINE, EMBASE, PsychINFO, C...

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Autores principales: Brekke, Malene, Berg, Rigmor C., Amro, Amin, Glavin, Kari, Haugland, Trude
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9271249/
https://www.ncbi.nlm.nih.gov/pubmed/35810315
http://dx.doi.org/10.1186/s12955-022-02011-y
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author Brekke, Malene
Berg, Rigmor C.
Amro, Amin
Glavin, Kari
Haugland, Trude
author_facet Brekke, Malene
Berg, Rigmor C.
Amro, Amin
Glavin, Kari
Haugland, Trude
author_sort Brekke, Malene
collection PubMed
description PURPOSE: To identify instruments used to measure parents’ Quality of Life (QoL) during pregnancy and the postpartum period, and to describe their characteristics and psychometric properties. METHODS: For this scoping review we conducted systematic literature searches in MEDLINE, EMBASE, PsychINFO, CINAHL and HaPI in mid-December 2020, to identify studies evaluating psychometric properties. The COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) were used to define and categorize psychometric properties. Two reviewers screened the studies independently, and customized screening questions were used to assess eligibility against inclusion criteria. Data were systematically extracted into a predesigned data charting matrix, and descriptively analyzed. RESULTS: The searches identified 5671 studies, of which 53 studies met the inclusion criteria. In total, there were 19 QoL instruments: 12 generic and seven period specific. The most reported instruments were SF-36, SF-12 and WHOQOL-BREF, and the most evaluated instruments were SF-12, WHOQOL-BREF, QOL-GRAV, and PQOL. We found that none of the identified instruments had been evaluated for all nine psychometric properties recommended by the COSMIN. The most reported psychometric properties were internal consistency and structural validity. The instruments were primarily assessed in parents residing in Asia (50%), and 83% of the studies were conducted from 2010 to 2020. Only three studies included psychometric measures assessed on fathers. CONCLUSION: Our review shows there is extensive evidence on the internal consistency and structural validity of QoL instruments used on parents during pregnancy and the postpartum period, but that the evidence on other psychometric properties is sparse. Validation studies and primary studies are needed to provide evidence on the reliability, validity, responsiveness, and interpretability of QoL instruments for this target group, in particular for fathers and partners. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12955-022-02011-y.
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spelling pubmed-92712492022-07-11 Quality of Life instruments and their psychometric properties for use in parents during pregnancy and the postpartum period: a systematic scoping review Brekke, Malene Berg, Rigmor C. Amro, Amin Glavin, Kari Haugland, Trude Health Qual Life Outcomes Review PURPOSE: To identify instruments used to measure parents’ Quality of Life (QoL) during pregnancy and the postpartum period, and to describe their characteristics and psychometric properties. METHODS: For this scoping review we conducted systematic literature searches in MEDLINE, EMBASE, PsychINFO, CINAHL and HaPI in mid-December 2020, to identify studies evaluating psychometric properties. The COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) were used to define and categorize psychometric properties. Two reviewers screened the studies independently, and customized screening questions were used to assess eligibility against inclusion criteria. Data were systematically extracted into a predesigned data charting matrix, and descriptively analyzed. RESULTS: The searches identified 5671 studies, of which 53 studies met the inclusion criteria. In total, there were 19 QoL instruments: 12 generic and seven period specific. The most reported instruments were SF-36, SF-12 and WHOQOL-BREF, and the most evaluated instruments were SF-12, WHOQOL-BREF, QOL-GRAV, and PQOL. We found that none of the identified instruments had been evaluated for all nine psychometric properties recommended by the COSMIN. The most reported psychometric properties were internal consistency and structural validity. The instruments were primarily assessed in parents residing in Asia (50%), and 83% of the studies were conducted from 2010 to 2020. Only three studies included psychometric measures assessed on fathers. CONCLUSION: Our review shows there is extensive evidence on the internal consistency and structural validity of QoL instruments used on parents during pregnancy and the postpartum period, but that the evidence on other psychometric properties is sparse. Validation studies and primary studies are needed to provide evidence on the reliability, validity, responsiveness, and interpretability of QoL instruments for this target group, in particular for fathers and partners. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12955-022-02011-y. BioMed Central 2022-07-09 /pmc/articles/PMC9271249/ /pubmed/35810315 http://dx.doi.org/10.1186/s12955-022-02011-y Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Review
Brekke, Malene
Berg, Rigmor C.
Amro, Amin
Glavin, Kari
Haugland, Trude
Quality of Life instruments and their psychometric properties for use in parents during pregnancy and the postpartum period: a systematic scoping review
title Quality of Life instruments and their psychometric properties for use in parents during pregnancy and the postpartum period: a systematic scoping review
title_full Quality of Life instruments and their psychometric properties for use in parents during pregnancy and the postpartum period: a systematic scoping review
title_fullStr Quality of Life instruments and their psychometric properties for use in parents during pregnancy and the postpartum period: a systematic scoping review
title_full_unstemmed Quality of Life instruments and their psychometric properties for use in parents during pregnancy and the postpartum period: a systematic scoping review
title_short Quality of Life instruments and their psychometric properties for use in parents during pregnancy and the postpartum period: a systematic scoping review
title_sort quality of life instruments and their psychometric properties for use in parents during pregnancy and the postpartum period: a systematic scoping review
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9271249/
https://www.ncbi.nlm.nih.gov/pubmed/35810315
http://dx.doi.org/10.1186/s12955-022-02011-y
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