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The perspectives of family caregivers of people with Alzheimer´s disease regarding advance care planning in China: a qualitative research

OBJECTIVES: Advance care planning (ACP) enables people to define goals and preferences for future medical treatment and care. Despite universal recognition of the importance of ACP for people with Alzheimer´s disease (AD) internationally, there is little support for its implementation in China. The...

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Autores principales: Chen, Linghui, Yin, Guo, Lin, Siting, Li, Yuanxia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9277909/
https://www.ncbi.nlm.nih.gov/pubmed/35831848
http://dx.doi.org/10.1186/s12888-022-04106-8
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author Chen, Linghui
Yin, Guo
Lin, Siting
Li, Yuanxia
author_facet Chen, Linghui
Yin, Guo
Lin, Siting
Li, Yuanxia
author_sort Chen, Linghui
collection PubMed
description OBJECTIVES: Advance care planning (ACP) enables people to define goals and preferences for future medical treatment and care. Despite universal recognition of the importance of ACP for people with Alzheimer´s disease (AD) internationally, there is little support for its implementation in China. The viewpoint of family caregivers is crucial in making clinical decisions about AD. Therefore, it’s critical to understand the family caregivers’ perspectives on ACP in order to promote its practice among people with AD in China. METHODS: Seventeen family caregivers of people with AD were purposively selected in three communities in Guangzhou. Semi-structured interviews were conducted to collect data and the data were analyzed using the thematic analysis. RESULTS: Three main themes were extracted: ①Attitudes toward ACP including positive and negative attitudes; ②Social pressure influencing ACP decision; ③Behavioral willingness of the implementation of ACP. CONCLUSIONS: Attitudes, social pressure, and behavioral willingness characterized the behavioral intentions of family caregivers of people with Alzheimer’s disease. It is recommended to strengthen efforts to publicity of advance care planning and promote legislation in China.
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spelling pubmed-92779092022-07-14 The perspectives of family caregivers of people with Alzheimer´s disease regarding advance care planning in China: a qualitative research Chen, Linghui Yin, Guo Lin, Siting Li, Yuanxia BMC Psychiatry Research OBJECTIVES: Advance care planning (ACP) enables people to define goals and preferences for future medical treatment and care. Despite universal recognition of the importance of ACP for people with Alzheimer´s disease (AD) internationally, there is little support for its implementation in China. The viewpoint of family caregivers is crucial in making clinical decisions about AD. Therefore, it’s critical to understand the family caregivers’ perspectives on ACP in order to promote its practice among people with AD in China. METHODS: Seventeen family caregivers of people with AD were purposively selected in three communities in Guangzhou. Semi-structured interviews were conducted to collect data and the data were analyzed using the thematic analysis. RESULTS: Three main themes were extracted: ①Attitudes toward ACP including positive and negative attitudes; ②Social pressure influencing ACP decision; ③Behavioral willingness of the implementation of ACP. CONCLUSIONS: Attitudes, social pressure, and behavioral willingness characterized the behavioral intentions of family caregivers of people with Alzheimer’s disease. It is recommended to strengthen efforts to publicity of advance care planning and promote legislation in China. BioMed Central 2022-07-13 /pmc/articles/PMC9277909/ /pubmed/35831848 http://dx.doi.org/10.1186/s12888-022-04106-8 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/ Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Chen, Linghui
Yin, Guo
Lin, Siting
Li, Yuanxia
The perspectives of family caregivers of people with Alzheimer´s disease regarding advance care planning in China: a qualitative research
title The perspectives of family caregivers of people with Alzheimer´s disease regarding advance care planning in China: a qualitative research
title_full The perspectives of family caregivers of people with Alzheimer´s disease regarding advance care planning in China: a qualitative research
title_fullStr The perspectives of family caregivers of people with Alzheimer´s disease regarding advance care planning in China: a qualitative research
title_full_unstemmed The perspectives of family caregivers of people with Alzheimer´s disease regarding advance care planning in China: a qualitative research
title_short The perspectives of family caregivers of people with Alzheimer´s disease regarding advance care planning in China: a qualitative research
title_sort perspectives of family caregivers of people with alzheimer´s disease regarding advance care planning in china: a qualitative research
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9277909/
https://www.ncbi.nlm.nih.gov/pubmed/35831848
http://dx.doi.org/10.1186/s12888-022-04106-8
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