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Respect, justice and learning are limited when patients are deidentified data subjects
INTRODUCTION: Critical for advancing a Learning Health System (LHS) in the U.S., a regulatory safe harbor for deidentified data reduces barriers to learning from care at scale while minimizing privacy risks. We examine deidentified data policy as a mechanism for synthesizing the ethical obligations...
Autores principales: | Gross, Marielle S., Hood, Amelia J., Rubin, Joshua C., Miller, Robert C. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9284924/ https://www.ncbi.nlm.nih.gov/pubmed/35860318 http://dx.doi.org/10.1002/lrh2.10303 |
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