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A global, cross-sectional survey of patient-reported outcomes, disease burden, and quality of life in epidermolysis bullosa simplex

BACKGROUND: Epidermolysis bullosa simplex (EBS) comprises a group of rare, blistering genodermatoses. Prior work has been limited by small sample sizes, and much remains unexplored about the disease burden and health-related quality of life (QOL) of patients with EBS. The aim of this study was to ch...

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Detalles Bibliográficos
Autores principales:	So, Jodi Y., Fulchand, Shivali, Wong, Christine Y., Li, Shufeng, Nazaroff, Jaron, Gorell, Emily S., de Souza, Mark P., Murrell, Dedee F., Teng, Joyce M., Chiou, Albert S., Tang, Jean Y.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2022
Materias:	Research
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9287948/ https://www.ncbi.nlm.nih.gov/pubmed/35841105 http://dx.doi.org/10.1186/s13023-022-02433-3

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