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Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients

Breast cancer patients are primary users of Internet Health Forums, virtual self‐help communities where they find and share information, preoccupations, and support. Previous literature has mainly focused on analysing the contents and the outcomes of breast cancer forums' participation. In ligh...

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Autores principales: Montali, Lorenzo, Zulato, Edoardo, Frigerio, Alessandra, Frangi, Elisa, Camussi, Elisabetta
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9290070/
https://www.ncbi.nlm.nih.gov/pubmed/34428308
http://dx.doi.org/10.1002/jcop.22696
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author Montali, Lorenzo
Zulato, Edoardo
Frigerio, Alessandra
Frangi, Elisa
Camussi, Elisabetta
author_facet Montali, Lorenzo
Zulato, Edoardo
Frigerio, Alessandra
Frangi, Elisa
Camussi, Elisabetta
author_sort Montali, Lorenzo
collection PubMed
description Breast cancer patients are primary users of Internet Health Forums, virtual self‐help communities where they find and share information, preoccupations, and support. Previous literature has mainly focused on analysing the contents and the outcomes of breast cancer forums' participation. In light of the Community of Practice theoretical model, our research investigated the psychosocial processes that build and shape patients' experience and participation in the forum. We conducted 16 semi‐structured email interviews with breast cancer patients recruited within a well‐established online community. Thematic analysis identified five processes—mirroring, monitoring, modelling, belonging, and distancing—that marked three phases of users' experience: initiation, participation, detachment. An interactive dynamic characterised the identified processes: the disease's experience was shaped by and, in turn, it crafted this virtual community. These community processes contributed to participants' empowerment at practical, informative, and emotional levels through the development of a shared repertoire of resources, stories, and ways of dealing with patients' recurring problems.
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spelling pubmed-92900702022-07-20 Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients Montali, Lorenzo Zulato, Edoardo Frigerio, Alessandra Frangi, Elisa Camussi, Elisabetta J Community Psychol Research Articles Breast cancer patients are primary users of Internet Health Forums, virtual self‐help communities where they find and share information, preoccupations, and support. Previous literature has mainly focused on analysing the contents and the outcomes of breast cancer forums' participation. In light of the Community of Practice theoretical model, our research investigated the psychosocial processes that build and shape patients' experience and participation in the forum. We conducted 16 semi‐structured email interviews with breast cancer patients recruited within a well‐established online community. Thematic analysis identified five processes—mirroring, monitoring, modelling, belonging, and distancing—that marked three phases of users' experience: initiation, participation, detachment. An interactive dynamic characterised the identified processes: the disease's experience was shaped by and, in turn, it crafted this virtual community. These community processes contributed to participants' empowerment at practical, informative, and emotional levels through the development of a shared repertoire of resources, stories, and ways of dealing with patients' recurring problems. John Wiley and Sons Inc. 2021-08-24 2022-03 /pmc/articles/PMC9290070/ /pubmed/34428308 http://dx.doi.org/10.1002/jcop.22696 Text en © 2021 The Authors. Journal of Community Psychology Published by Wiley Periodicals LLC https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Research Articles
Montali, Lorenzo
Zulato, Edoardo
Frigerio, Alessandra
Frangi, Elisa
Camussi, Elisabetta
Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients
title Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients
title_full Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients
title_fullStr Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients
title_full_unstemmed Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients
title_short Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients
title_sort mirroring, monitoring, modelling, belonging, and distancing: psychosocial processes in an online support group of breast cancer patients
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9290070/
https://www.ncbi.nlm.nih.gov/pubmed/34428308
http://dx.doi.org/10.1002/jcop.22696
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