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Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients
Breast cancer patients are primary users of Internet Health Forums, virtual self‐help communities where they find and share information, preoccupations, and support. Previous literature has mainly focused on analysing the contents and the outcomes of breast cancer forums' participation. In ligh...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9290070/ https://www.ncbi.nlm.nih.gov/pubmed/34428308 http://dx.doi.org/10.1002/jcop.22696 |
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author | Montali, Lorenzo Zulato, Edoardo Frigerio, Alessandra Frangi, Elisa Camussi, Elisabetta |
author_facet | Montali, Lorenzo Zulato, Edoardo Frigerio, Alessandra Frangi, Elisa Camussi, Elisabetta |
author_sort | Montali, Lorenzo |
collection | PubMed |
description | Breast cancer patients are primary users of Internet Health Forums, virtual self‐help communities where they find and share information, preoccupations, and support. Previous literature has mainly focused on analysing the contents and the outcomes of breast cancer forums' participation. In light of the Community of Practice theoretical model, our research investigated the psychosocial processes that build and shape patients' experience and participation in the forum. We conducted 16 semi‐structured email interviews with breast cancer patients recruited within a well‐established online community. Thematic analysis identified five processes—mirroring, monitoring, modelling, belonging, and distancing—that marked three phases of users' experience: initiation, participation, detachment. An interactive dynamic characterised the identified processes: the disease's experience was shaped by and, in turn, it crafted this virtual community. These community processes contributed to participants' empowerment at practical, informative, and emotional levels through the development of a shared repertoire of resources, stories, and ways of dealing with patients' recurring problems. |
format | Online Article Text |
id | pubmed-9290070 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-92900702022-07-20 Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients Montali, Lorenzo Zulato, Edoardo Frigerio, Alessandra Frangi, Elisa Camussi, Elisabetta J Community Psychol Research Articles Breast cancer patients are primary users of Internet Health Forums, virtual self‐help communities where they find and share information, preoccupations, and support. Previous literature has mainly focused on analysing the contents and the outcomes of breast cancer forums' participation. In light of the Community of Practice theoretical model, our research investigated the psychosocial processes that build and shape patients' experience and participation in the forum. We conducted 16 semi‐structured email interviews with breast cancer patients recruited within a well‐established online community. Thematic analysis identified five processes—mirroring, monitoring, modelling, belonging, and distancing—that marked three phases of users' experience: initiation, participation, detachment. An interactive dynamic characterised the identified processes: the disease's experience was shaped by and, in turn, it crafted this virtual community. These community processes contributed to participants' empowerment at practical, informative, and emotional levels through the development of a shared repertoire of resources, stories, and ways of dealing with patients' recurring problems. John Wiley and Sons Inc. 2021-08-24 2022-03 /pmc/articles/PMC9290070/ /pubmed/34428308 http://dx.doi.org/10.1002/jcop.22696 Text en © 2021 The Authors. Journal of Community Psychology Published by Wiley Periodicals LLC https://creativecommons.org/licenses/by-nc-nd/4.0/This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ (https://creativecommons.org/licenses/by-nc-nd/4.0/) License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made. |
spellingShingle | Research Articles Montali, Lorenzo Zulato, Edoardo Frigerio, Alessandra Frangi, Elisa Camussi, Elisabetta Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients |
title | Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients |
title_full | Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients |
title_fullStr | Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients |
title_full_unstemmed | Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients |
title_short | Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients |
title_sort | mirroring, monitoring, modelling, belonging, and distancing: psychosocial processes in an online support group of breast cancer patients |
topic | Research Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9290070/ https://www.ncbi.nlm.nih.gov/pubmed/34428308 http://dx.doi.org/10.1002/jcop.22696 |
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