Medical, welfare, and educational challenges and psychological distress in parents caring for an individual with 22q11.2 deletion syndrome: A cross‐sectional survey in Japan

Parents of children with 22q11.2 deletion syndrome (22q11DS) experience distress not only due to multimorbidity in the patients, but also due to professionals' lack of understanding about 22q11DS and insufficient support systems. This study investigated relationships between medical, welfare, a...

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Detalles Bibliográficos
Autores principales: Morishima, Ryo, Kumakura, Yousuke, Usami, Satoshi, Kanehara, Akiko, Tanaka, Miho, Okochi, Noriko, Nakajima, Naomi, Hamada, Junko, Ogawa, Tomoko, Ando, Shuntaro, Tamune, Hidetaka, Nakahara, Mutsumi, Jinde, Seiichiro, Kano, Yukiko, Tanaka, Kyoko, Hirata, Yoichiro, Oka, Akira, Kasai, Kiyoto
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley & Sons, Inc. 2021
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9290134/
https://www.ncbi.nlm.nih.gov/pubmed/34480405
http://dx.doi.org/10.1002/ajmg.a.62485

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