Whole Body, Whole Life, Whole Family: Patients’ Perspectives on X-Linked Hypophosphatemia

The rare genetic disorder X-linked hypophosphatemia (XLH) is often exclusively considered to impact children, and, as such, adult patients with XLH may receive inadequate care because their symptoms are not associated with XLH. However, studies have shown that XLH has long-term adverse health conseq...

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Detalles Bibliográficos
Autores principales: Hamilton, Amber A, Faitos, Susan, Jones, Gin, Kinsley, Athina, Gupta, Rupal Naik, Lewiecki, E Michael
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2022
Materias:
Patient Perspective
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9290905/
https://www.ncbi.nlm.nih.gov/pubmed/35860754
http://dx.doi.org/10.1210/jendso/bvac086

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